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Resources


The following resources are taken from Life on Wheels: For the Active Wheelchair User, by Gary Karp, copyright 1999, published by O'Reilly & Associates, Inc. To order, or get more information about Gary's book, call 1-800-998-9938. Permission is granted to print and distribute this excerpt for noncommercial use as long as the above source is included. The information in this article is meant to educate and should not be used as an alternative for professional medical care.

Disability-specific organizations

Many of these organizations also have local chapters who might provide such services as support groups and educational or therapeutic programs.

Amputee Coalition of America
900 E. Hill Avenue, Suite 285
Knoxville, TN 37915
Phone: (800) 355-8772
Web: http://www.amputee-coalition.org

Amyotrophic Lateral Sclerosis Association
27001 Agoura Road, Suite 150
Calabasas Hills, CA 91301-5104
Phone: (800) 782-4747
Email: alsinfo@alsa-national.org
Web: http://www.alsa.org

Arthritis Foundation
1330 W. Peachtree Street
Atlanta, GA 30309
Phone: (404) 872-7100
Web: http://www.arthritis.org

Brain Injury Association of America
105 N. Alfred Street
Alexandria, VA 22314
Phone: (703) 236-6000
Web: http://www.biausa.org

Center for Research on Women with Disabilities
Baylor College of Medicine
3440 Richmond Avenue, Suite B
Houston, TX 77046
Phone: (800) 442-7693
Web: http://www.bcm.tmc.edu/crowd

The International Polio Network
4207 Lindell Boulevard, #110
St. Louis, MO 63108-2915
Phone: (314) 534-0475
Web: http://www.post-polionetwork.org.au/index2.html

The International Ventilator Users Network
4207 Lindell Boulevard, #110
St. Louis, MO 63108-2915
Phone: (314) 534-0475

The Muscular Dystrophy Association
3300 E. Sunrise Drive
Tucson, AZ 85718
Phone: (800) 572-1717
Email: mda@mdausa.org
Web: http://www.mdausa.org

National Brain Injury Association
105 N. Alfred Street
Alexandria, VA 22314
Web: http://www.biausa.org

National Amputation Foundation
12-45 150th Street
Whitestone, NY 11357
Phone: (718) 767-0596

National Head Injury Foundation
1776 Massachusetts Ave. N.W., Suite 100
Washington, D.C. 20036
Phone: (800) 444-NHIF (6443)

National Family Caregivers Association
9621 E. Bexhill Drive
Kensington, MD 20895-3104
Phone: (301) 942-6430

National Multiple Sclerosis Society
733 Third Avenue
New York, NY 10017
Phone: (800) FIGHT-MS (344-4867)
Email: info@nmss.org
Web: http://www.nmss.org

National Organization for Rare Disorders
P.O. Box 8923
New Fairfield, CT 06812
Phone: (203) 746-6518
Web: http://www.rarediseases.org

The National Spinal Cord Injury Association
545 Concord Avenue, Suite 29
Cambridge, MA 02138
Phone: (800) 962-9629

The National Stroke Association
96 Inverness Drive E., Suite I
Englewood, CO 80112-5112
Phone: (800) 787-6537
Email: info@stroke.org
Web: http://www.stroke.org

Spina Bifida Association of America
4590 MacArthur Blvd. N.W., Suite 250
Washington D.C. 20007
Phone: (800) 621-3141
Web: http://www.sbaa.org

TASH-Disability Advocacy Worldwide
29 W. Susquehanna Avenue, Suite 210
Baltimore, MD 21204
Phone: (410) 828-8274 x104
Web: http://www.tash.org

Osteogenisis Imperfecta Foundation
5005 W. Laurel Street, Suite 210
Tampa, FL 33607
Phone: (813) 282-1161

The Association for Persons with Severe Handicaps
7010 Roosevelt Way N.E.
Seattle, WA 98115
Phone: (206) 523-8446

United Cerebral Palsy Association
1660 L Street N.W., Suite 700
Washington, D.C. 20036
Phone: (800) 872-5827
Email: ucpnatl@ucpa.org
Web: http://www.ucpa.org

Disability advocacy groups

National Organization on Disability
910 16th Street N.W.
Washington, D.C. 20006-2988
Phone: (202) 293-5960
Web: http://www.nod.org

Authorized by Congress as an advisory body to the Department of Education, NCD reviews disability-related laws and policies of the federal government, publishes a quarterly newsletter, and sponsors studies such as the 1998 Louis Harris Poll on disability.

DREDF
2212 Sixth Street
Berkeley, CA 94710
Phone: (800) 466-4232
Web: http://www.dredf.org

A group of attorneys and advocates who pursue legal enforcement and remedies in selected cases.

Not Dead Yet
7521 Madison Street
Forest Park, IL 60130
Phone: (708) 209-1500
Web: http://www.acils.com/notdeadyet/

Advocates against the policy of assisted suicide.

World Institute on Disability
510 16th Street, Suite 100
Oakland, CA 94612-1502
Phone: (510) 763-4100

A nonprofit research and advocacy group that focuses on major public policy issues. They also conduct a personal assistance program.

Hospitals

Veterans Administration Hospitals
Phone: (800) 827-1000
Web: http://www.va.gov

Model system rehabilitation hospitals

The following major rehabilitation hospitals participate in the Model System, which collects data relevant to disability. Being a model hospital does not mean being the best, but most are large centers with many medical services gathered in one place. You should research all rehab hospitals in your area.

CARF, the Rehabilitation Accreditation Commission
4891 E. Grant Road
Tucson, AZ 85712
Phone: (520) 325-1044
Web: http://www.carf.org

CARF will refer you to accredited rehab programs in your area.

Boston University Medical Center
88 E. Newton Street, F-511
Boston, MA 02118
Phone: (617) 638-7306

Craig Hospital
Rocky Mountain Spinal Injury Center
3425 S. Clarkson Street
Englewood, CO 80110
Phone: (303) 789-8220
Web: http://www.craighospital.com

The Institute for Rehabilitation and Research
Texas Medical Center
1333 Moursund Avenue
Houston, TX 77030
Phone: (713) 797-5910

Kessler Institute
1199 Pleasant Valley Way
West Orange, NJ 07052
Phone: (973) 731-3600

Medical College of Virginia
P.O. Box 980677
Richmond, VA 23298-0677
Phone: (804) 828-0861
Web: http://www.medschool.vcu.edu

MetroHealth Medical Center
Department of Physical Medicine & Rehabilitation
2500 MetroHealth Drive
Cleveland, OH 44109-1998
Phone: (216) 778-3483
Web: http://www.metrohealth.org/clinical/norscis

Mt. Sinai Medical Center
Department of Rehabilitation Medicine
1425 Madison Avenue
New York, NY 10029-6574
Phone: (212) 241-5417
Web: http://www.mssm.edu/rehab/scrpig.html

Rancho Los Amigos Medical Center
7601 E. Imperial Highway
Downey, CA 90242
Phone: (562) 401-7041
Web: http://www.rancho.org

Rehabilitation Institute of Chicago
345 E. Superior
Chicago, IL 60611
Phone: (800) 354-REHAB
Web: http://www.rehabchicago.org

Rehabilitation Institute of Michigan
Wayne State University
261 Mack Boulevard
Detroit, MI 48201
Phone: (313) 745-1203

Santa Clara Valley Medical Center
751 S. Bascom Avenue
San Jose, CA 95128
Phone: (408) 885-2000

Shepherd Center
2020 Peachtree Road N.W.
Atlanta, GA 30309
Phone: (404) 352-2020
Web: http://www.shepherd.org

Spain Rehabilitation Center
University of Alabama
1717 6th Avenue S.
Birmingham, AL 35233-7330
Phone: (205) 934-7229
Web: http://www.uab.edu/uasom/medcenter/spain.htm

Thomas Jefferson University Hospital
111 S. 10th Street
Philadelphia, PA 19107
Phone: (215) 955-6573

University of Michigan Medical Center
Department of Physical Medicine & Rehabilitation
300 North Ingalls
Ann Arbor, MI 48109-0491
Phone: (734) 763-0971
Web: http://www.med.umich.edu/pmr

University of Missouri-Columbia
Department of Physical Medicine & Rehabilitation
One Hospital Drive
Columbia, MO 65212
Phone: (573) 882-6271
Web: http://www.hsc.missouri.edu/~momscis

University of Washington School of Medicine
Department of Rehabilitation Medicine
1959 N. E. Pacific Street
Seattle, WA 98195
Phone: (206) 543-8171
Web: http://weber.u.washington.edu/~rehab

Personal assistance services

Center on Human Policy
Syracuse University
200 Huntington Hall
Syracuse, NY 13244-2340

Request the information packet: A Checklist for Evaluating Personal Care Assistance Services.

The Independent Living Service Center
607 S. E. Everett Mall Way, Suite 9B
Everett, WA 98208
Phone: (425) 347-5768

Provides a manual of information for finding and employing personal care assistants.

RRTC on Aging with SCI
3425 S. Clarkson Street
Englewood, CO 80110

Request the publication: SCI & Personal Care Assistants: How to Find, Hire, and Keep Them

Functional electrical stimulation (FES)

FES Information Center
11000 Cedar Avenue, Room 230
Cleveland, OH 44106-3052
Phone: (800) 666-2353
Web: http://feswww.fes.cwru.edu

Clearinghouse of information on functional electric stimulation.

NeuroControl Corporation
8333 Rockside Road
Valley View, OH 44125
Phone: (800) 378-6955
Web: http://www.neurocontrol.com

Makers of FES products for hand grip and bladder control.

Sigmedics, Inc.
200 Larkin Drive, Suite F
Wheeling, IL 60090-6498
Phone: (800) 582-WALK
Email: fzeiss@ameritech.net
Web: http://www.umich.edu/hpgw

Makers of Parastep, FNS walking system. The URL is for the Parastep users' Web site.

Service animals

Assistance Dogs of America
1178 Slade Avenue
Columbus, OH 43235
Phone: (614) 459-9115

Canine Companions for Independence
P.O. Box 446
Santa Rosa, CA 95402-0446
Phone: (707) 577-1700
Web: http://www.caninecompanions.org

Freedom Service Dogs
P.O. Box 150217
Lakewood, CO 80215-0217
Phone: (303) 234-9512

Wheelchairs and cushions

Colours
1591 S. Sinclair Street
Anaheim, CA 92806
Phone: (800) 892-8998
Web: http://www.coloursbypermobil.com

Manual lightweight wheelchairs, including the Boing rear suspension chair, and sport models for racing, rugby, and more.

Crown Therapeutics/Roho
100 Florida Avenue
Belleville, IL 62221
Phone: (800) 851-3449
Web: http://www.rohoinc.com

Air flotation cushions. The Quadtro allows individual inflation of four quadrants.

ErgoAir
131 D.W. Highway, #326
Nashua, NH 03060-5245
Phone: (800) 559-9856
Email: ergoair@empire.net
Web: http://www.ergoair.com

Alternating-pressure wheelchair cushions.

Everest & Jennings
3601 Rider Trail S.
Earth City, MO 63045
Phone: (800) 235-4661, (800) 708-9601

A full line of manual and power wheelchairs, tilt and recline systems, and cushions.

Flofit Medical
5455 Spine Road
Boulder, CO 80301
Phone: (800) 356-2668
Email: flofit@flofitmed.com
Web: http://www.flofitmed.com

Foam and foam/gel wheelchair cushions.

Grant Airmass
986 Bedford Street
Stamford, CT 06905
Phone: (800) 243-5237
Email: grant@grantairmass.com
Web: http://www.grantairmass.com

Alternating-pressure cushions.

Invacare Corporation/PinDot
899 Cleveland Street
Elyria, OH 44036
Phone: (800) 333-6900
Web: http://www.invacare.com

Manual and power wheelchairs, cushions, and positioning systems.

Iron Horse Productions
2624 Conner Street
Port Huron, MI 48060
Phone: (800) 426-0354

High-endurance, four-wheel suspension manual wheelchairs.

New Hall's Wheels
P.O. Box 380784
Cambridge, MA 02238
Phone: (617) 628-6546
Web: http://www.tiac.net/users/newhalls

Customized lightweight manual and sport chairs.

Otto Bock Reha
3000 Xenium Lane North
Minneapolis, MN 55441-2661
Phone: (800) 328-4058
Email: ottobockus@aol.com
Web: http://www.ottobock.com

Manual wheelchairs, cushions.

Permobil
6B Gil Street
Woburn, MA 01801
Phone: (888) 737-6624
Web: http://www.permobil.se

Power/standing wheelchairs.

Quickie Designs/Sunrise Medical/Jay Medical
2842 Business Park Avenue
Fresno, CA 93727
Phone: (209) 292-2171
Web: http://www.sunrisemedical.com

Manual and power wheelchairs, sport chairs, Jay cushions, Soneil SuperCharger battery chargers.

Supracor
2050 Corporate Court
San Jose, CA 95131-1753
Phone: (800) 787-7226
Web: http://www.supracor.com

Honeycomb-type cushions.

Teftec
6929 Old Spring Branch Road
Spring Branch, TX 78070
Phone: (830) 885-7588
Email: teftec@teftec.com
Web: http://www.teftec.com

All-terrain power wheelchairs.

Theradyne Healthcare
A division of Kurt Manufacturing
395 Ervin Industrial Drive
Jordan, MN 55352
Phone: (800) 328-4014
Web: http://www.theradyne.com/

Wide range of state-of-the-art homecare and rehab products.

Wheelchairs of Kansas
204 West 2nd Street
Ellis, KS 67637
Phone: (800) 537-6454
Email: whcharks@pld.com

Power chairs for obese users.

Home access

AARP
Product Report: Personal Emergency Response Systems
601 E Street N.W.
Washington, D.C. 20049

Publication #PF 3986592-D1290.

Advanced Living Systems
Product Search Services
428 North Lamar
Oxford, MS 38655-3204
Phone: (601) 234-0158

Has a database of products. Provides information for a small fee.

Altro Safety Floors
399 Main Street
Los Altos, CA 94022
Phone: (605) 941-1961

Non-slip flooring products.

Architectural and Transportation Barriers Compliance Board
1331 F Street N.W.
Washington, D.C. 20004
Phone: (800) 872-2253

Provides copies of architectural access standards and information about federal compliance requirements.

AT&T Special Needs Center
2001 Route 46, Suite 310
Parsippany, NJ 07054-1315
Phone: (800) 233-1222
TDD: (800) 833-3232

Information on assistive communication devices.

The Center for Universal Design
School of Design, North Carolina State University
P.O. Box 8613
Raleigh, NC 27695-8613
Phone: (919) 515-3082
Email: cud@ncsu.edu
Web: http://www.design.ncsu.edu/cud

Has a variety of publications, videos, presentation materials, and product evaluation guides for door hardware, ovens, and other appliances.

Dor-O-Matic
7350 W. Wilson Avenue
Chicago, IL 60656-4786
Phone: (800) 543-4635

Automatic door systems with delayed action.

Enerlogic Systems
P.O. Box 3743
Nashua, NH 03061
Phone: (603) 880-4066

Home automations system. Uses a home computer and existing wiring.

Essex Electronics, Inc.
1130 Mark Avenue
Carpinteria, CA 93013
Phone: (805) 684-7601

Electronic touchpad keyless entry systems.

Grand Traverse Technologies
8130 Lehigh Avenue
Morton Grove, IL 60053
Phone: (800) 323-1245

Maker of the Freedom Bath, a tub with a side door that slides down.

Guardian Products/Sunrise Medical
12800 Wentworth Street, Box C-4522
Arleta, CA 91331
Phone: (800) 423-8034

Bath lifts, grab bars, and bathing accessories.

Hafele America Co.
3901 Cheyenne Drive
P.O. Box 4000
Archdale, NC 27263
Phone: (800) 423-3531

Closet organizing systems and accessories.

L.E. Johnson Products
2100 Sterling Avenue
Elkhart, IN 46516
Phone: (800) 837-5664
Web: http://www.johnsonhardware.com

Pocket door kits and hardware.

Paralyzed Veterans of America
National Architecture Program
801 18th Street, N.W.
Washington, D.C. 20006
Phone: (202) 416-7645

ProMatura Group
Product Search Services
142 Highway 30
Oxford, MS 38655
Phone: (800) 201-1483
Web: http://www.promatura.com

Has a database of products. Provides information for a small fee.

The Ramp Project
Metropolitan Center for Independent Living
1600 University Avenue W., Suite 16
St. Paul, MN 55104
Phone: (612) 646-8342
Web: http://www.macil.org/mcil

Ultraflo
P.O. Box 2294
Sandusky, OH 44870
Phone: (800) 760-5629
Web: http://www.ultraflo.com

Scald control water distribution system.

U.S. Department of Housing and Urban Development
Office of Fair Housing and Equal Opportunity
451 Seventh Street S.W.
Washington, D.C. 20410
Phone: (202) 708-2878

Fair housing accessibility guidelines, Federal Register document Vol. 56, No. 44. March 1991.

X-10 USA, Inc.
P.O. Box 420
Closter, NJ 07624
Phone: (800) 442-5138
Web: http://www.x10.com

Carrier current remote control systems.

Sexuality

Able-Together
P.O. Box 460053
San Francisco, CA 94146-0053
Phone: (415) 522-9091
Web: http://www.well.com/user/blaine/abletog.html

Information and support specific to gay, lesbian, and bisexual persons with disabilities.

CLEO Living Aids
P.O. Box 1076
White Plains, NY 10602
Phone: (800) 321-0595

Adaptive devices for use with sexual products.

PeopleNet
P.O. Box 897
Levittown, NY 11756
Phone: (516) 579-4043
Web: http://idt.net/~mauro/

Sexual resources, writings on sexuality and disability, and a meeting service.

Sexuality Reborn: A Video about Sexuality and SCI
Kessler Medical Rehabilitation and Research
1199 Pleasant Valley Way
West Orange, NJ 07052
Phone: (800) 248-3221 x6977

Offers a videotape hosted by actor Ben Vereen with interviews of couples with at least one disabled partner.

The Xandria Collection
Special Edition for Disabled People
P.O. Box 31039
San Francisco, CA 94131
Phone: (800) 242-2823

Catalog of sexual aids and products.

Parenting resources

Through the Looking Glass
2198 Sixth Street, Suite 100
Berkeley, CA 94710-2204
Phone: (800) 644-2666
Email: tlg@lookingglass.org
Web: http://www.lookingglass.org

DisAbled Women's Network
From Ontario, Canada: (800) 561-4727
Outside Ontario: (705) 671-0825

Offers the publication, "I want to be a mother. I have a disability: What are my choices?"

Research support organizations

American Paralysis Association
500 Morris Avenue
Springfield, NJ 07081
Phone: (201) 379-2690
Web: http://www.apacure.com

The Buoniconti Fund to Cure Paralysis
The Miami Project to Cure Paralysis
1600 N.W. 10th Avenue, R-48
Miami, FL 33136
Phone: (305) 243-6001
Web: http://www.miamiproject.miami.edu

Canadian Spinal Research Organization
120 Newkirk Road
Richmond Hill, Ontario, Canada L4C 9S7
Phone: (800) 361-4004
Email: csro@globalserve.net
Web: http://www.csro.com

The Kent Waldrep National Paralysis Foundation
16415 Addison Road, Suite 550
Addison, TX 75001
Phone: (800) 925-2873
Web: http://www.kwnpf.org

People for the Ethical Treatment of Animals (PETA)
501 Front Street
Norfolk, VA 23510
Phone: (757) 622-7382
Web: http://www.peta-online.org

Included here to assist you in addressing the question of the use of animals in research.

PVA Spinal Cord Research Foundation
801 18th Street N.W.
Washington, D.C. 20006
Phone: (800) 424-8200 x659
Web: http://www.pva.org

Spinal Cord Society
Wendell Road
Fergus Falls, MN 56537
Phone: (218) 739-5252

Adaptive technology

Don Johnston Incorporated
1000 N. Rand Road, Bldg. 115
P.O. Box 639
Wauconda, IL 60084-0639
Phone: (800) 999-4660
Web: http://www.donjohnston.com

Software for word prediction, speech synthesis, adaptive keyboards and accessories, educational software.

Dragon Systems
320 Nevada Street
Newton, MA 02460
Phone: (800) 437-2466
Web: http://www.dragonsys.com

Voice recognition software.

DynaVox Systems, Inc.
2100 Wharton Street, Suite 400
Pittsburgh, PA 15203
Phone: (800) 344-1778
Web: http://www.dynavoxsys.com

Augmentive communication products.

Closing the Gap
P.O. Box 68
Henderson, MN 56044
Phone: (507) 248-3294
Web: http://www.closingthegap.com

Bimonthly newsletter, $26 per year.

IBM Independence Series
P.O. Box 1328
Boca Raton, FL 33429-1328
Phone: (800) 426-4832
Web: http://www.austin.ibm.com/sns/

Neil Squire Foundation
2250 Boundary Road, Suite 220
Burnaby, British Columbia, Canada V5M 4G5
Phone: (604) 473-9363
Web: http://www.neilsquire.ca

Adaptive technology programs, including research and development, consultation, and support for employment using computing.

Trace Research and Development Center
University of Wisconsin-Madison
5901 Research Park Boulevard
Madison, WI 53719-1252
Phone: (608) 262-6966
Web: http://www.trace.wisc.edu

Athletics and recreation

American Wheelchair Bowling Association
6264 N. Andrews Avenue
Ft. Lauderdale, FL 33309
Phone: (954) 491-2886

Disabled Sports USA
451 Hungerford Drive, Suite 100
Rockville, MD 20850
Phone: (301) 217-0960
Web: http://www.dsusa.org

Handicapped Scuba Association
1104 El Prado
San Clemente, CA 92672-4637
Phone: (949) 498-6128

National Wheelchair Basketball Association
Charlotte Institute of Rehabilitation
1100 Blythe Boulevard
Charlotte, NC 28203
Phone: (704) 355-1064

National Wheelchair Poolplayers Association
30872 Puritan Street
Livonia, MI 48154-3253
Phone: (734) 422-2124
Web: http://www.bca-pool.com/nwba

North American Riding for the Handicapped Association
P.O. Box 33150
Denver, CO 80233
Phone: (800) 369-7433
Web: http://www.narha.org

Paralyzed Veterans of America
2111 E. Highland Avenue, Suite 180
Phoenix, AZ 85016-4702
Phone: (602) 224-0500
Web: http://www.pva.org

United Cerebral Palsy Athletic Association, Inc.
200 Harrison Avenue
Newport, RI 02840
Phone: (401) 848-2460
Web: http://www.uscpaa.org

United States Quad Rugby Association
5861 White Cypress Drive
Lake Worth, FL 33467-6230
Phone: (561) 964-1712
Web: http://www.quadrugby.com

Wheelchair Sports USA
3595 Fountain Boulevard, Suite L-1
Colorado Springs, CO 80910
Phone: (719) 574-1150
Web: http://www.wsusa.org

Wilderness Inquiry, Inc.
131 Fifth Street, Box 84
Minneapolis, MN 55414-1546
Phone: (800) 728-0719
Web: http://www.wildernessinquiry.org

Employment

AgrAbility Project
Breaking New Ground Resource Center
Purdue University
1146 ABE Building
West Lafayette, IN 47907-1146
Phone: (800) 825-4264
Web: http://abe.www.ecn.purdue.edu/ABE/Extension/BNG/
agrabilityaccomp.html

The AgrAbility Project assists agricultural and agribusiness workers who have physical and mental disabilities through education and assistance. Their Web site includes links to rural assistive technology information.

Electronic Industries Foundation
2500 Wilson Boulevard
Arlington, VA 22201
Phone: (703) 907-7400

Has a program to promote technology training for persons with disability.

Job Accommodation Network
918 Chestnut Ridge Road
P.O. Box 6080
Morgantown, WV 26506-6080
Phone: (800) 526-7234
Web: http://www.jan.wvu.edu

The President's Committee on Employment of People with Disabilities
1331 F Street, N.W.
Washington, D.C. 20004-1107
Phone: (202) 376-6200
Web: http://www.pcepd.gov

U.S. Small Business Administration
1441 L Street N.W., Room 418
Washington, D.C. 20416
Web: http://www.sbaonline.sba.gov

Loan guarantees under their Handicapped Assistance Loan program. Contact their local office, or see the web site for local resources.

Travel

Access-Able Travel Source, LLC
P.O. Box 1796
Wheat Ridge, CO 80034
Phone: (303) 232-2979
Web: http://www.access-able.com

Accessible Vans of America
4 Beryl Road
Paoli, PA 19301
Phone: (800) AVA-VANS
Web: http://www.accessiblevans.com

Associated Rollx Vans
6591 W. Highway 13
Savage, MN 55378
Phone: (800) 956-6668
Web: http://www.rollxvans.com

Hostelling International--American Youth Hostels
733 15th Street N.W., Suite 840
Washington, D.C. 20005
Phone: (202) 783-6161
Web: http://www.hiayh.org

Wheelchair Getaways
Phone: (800) 536-5518
Web: http://www.wheelchair-getaways.com

Converted vans available for rental.

Recommended reading

Beyond Ramps: Disability at the End of the Social Contract, by Marta Russell, Common Courage Press.

CripZen: A Manual for Survival, by Lorenzo W. Milam, Mho & Mho Works. Written with humor and realism, CripZen is a survival text for anyone facing a new world of rehabilitation specialists, nurses, and frightened family members. Milam discusses sex, coping with depression and anger, finding psychological help, and using such spiritual means of survival as meditation.

Don't Worry, He Won't Get Far on Foot, by John F. Callahan, Vintage Books.

Enabling Romance: A Guide to Love, Sex, and Relationships for the Disabled, by Ken Kroll and Erica Levy Klein, Woodbine House.

FDR's Splendid Deception, by Hugh Gregory Gallagher, Vandamere Press.

Fodor's Great American Vacations for Travelers with Disabilities, Fodors Travel Publications.

Living in the State of Stuck: How Technology Impacts the Lives of Persons with Disabilities, by Marcia J. Scherer, Brookline Books.

Moving Violations: War Zones, Wheelchairs, and Declarations of Independence, by John Hockenberry, Hyperion.

No Pity: People with Disabilities Forging a New Civil Rights Movement, by Joseph P. Shapiro, Times Books.

Nothing About Us Without Us: Disability Oppression and Empowerment, by James I. Charlton, University of California Press.

Spinal Network: The Total Wheelchair Book, by Sam Maddox, Spinal Network.

Staring Back: The Disability Experience from the Inside Out, by Kenny Fries (Editor), Plume.

Understanding and Accommodating Physical Disabilities: The Manager's Desk Reference, by Dorothy Stonely Shrout, Quorum Books.

Waist-High in the World: A Life Among the Nondisabled, by Nancy Mairs, Beacon Press.

Women and Disability: The Experience of Physical Disability Among Women, by Susan Lonsdale, St. Martins Press.

Disability publications

Accent On Living
Gillum Road and High Drive
P.O. Box 700
Bloomington, IL 61702
Phone: (309) 378-2961
Email: acntlvng@aol.com

Enable Magazine
American Association of People with Disabilities
3659 Cortez Road W.
Bradenton, FL 34210
Phone: (888) 4-ENABLE (436-2253)
Email: readenable@aol.com

Mouth Magazine
61 Brighton Street
Rochester, NY 14607-2656
Phone: (716) 442-2916

New Mobility
23815 Stuart Ranch Road
P.O. Box 8987
Malibu, CA 90265
Phone: (310) 317-4522
Web: http://www.newmobility.com

Paraplegia News
Published by the Paralyzed Veterans of America
2111 E. Highland Avenue, Suite 180
Phoenix, AZ 85016-4702
Phone: (602) 224-0500
Email: pvapub@aol.com

The Ragged Edge
P.O. Box 145
Louisville, KY 40201
Web: http://www.ragged-edge-mag.com

Sports 'N Spokes
2111 E. Highland Avenue, Suite 180
Phoenix, AZ 85016-4702
Phone: (602) 224-0500
Email: pvapub@aol.com

Internet web sites

The following World Wide Web sites have extensive information and links to other sites and sources. Through this list, you should be able to find just about any disability resource you might want.

ABLEDATA
http://www.abledata.com

A large database of disability resources operated by The National Institute on Disability and Rehabilitation Research, U.S. Department of Education.

Amputee Coalition of America
National Limb Loss Information Center
http://www.amputee-coalition.org

disABILITY Information and Resources
http://www.eskimo.com/~jlubin/disabled/all.htm

A huge list of disability-related Web sites.

Disability Resources from Evan Kemp Associates
http://www.eka.com

The late Evan Kemp was an attorney and principal figure in the development of the Americans with Disabilities Act (ADA).

Independent Living Research Utilization Program
http://www.bcm.tmc.edu/ilru

Gathers material from Independent Living Centers around the country. They are an information clearinghouse for ILCs, conduct conferences on ILC management, and offer various books, posters, and brochures.

National Rehabilitation Information Center
http://www.cais.net/naric

For twenty years, the staff of NARIC has collected the results of federally funded research projects. NARIC's literature collection, which includes commercially published books, journal articles, and audiovisuals, numbers more than 60,000.

rehabNET--Resource on Disability and Medical Rehabilitation
http://www.rehabnet.com

Sexual Health Network
http://www.sexualhealth.com

The Society for Disability Studies
http://www.wipd.com/sds
Publishes academic studies in the Disability Studies Quarterly.

Spinal Cord Injury, Stroke, and Paralysis Resources Guide
http://neurosurgery.mgh.harvard.edu/

University of Alabama at Birmingham
http://www.spinalcord.uab.edu

UAB is the collector of data from the Model System rehab hospitals. They maintain a comprehensive web site with links to a very wide array of other disability-related sites. It is easily navigated by means of an alphabetized index.

Internet discussion lists

An email address is all it takes to participate in online discussions. Once you have subscribed, all messages in the discussion will be sent to you. You can choose to participate or be a "lurker." Generally, these lists are dedicated to a specific topic, and you should respect the boundaries of the discussion. You will find people very willing and happy to help you address specific needs and questions.

The process of subscription is easy. You simply send a message to a server address, then you will get a response saying that you have been added to the list, or asking you to reply with a confirmation. You will also be sent guidelines and options for the list. It is often possible, for instance, to receive the day's discussion as a single file, rather than having your mailbox fill with each individual message.

List archives at Maelstrom.StJohns.edu

http://maelstrom.stjohns.edu/archives/

This Web site provides an index of the many discussion lists hosted by St. John's University. To subscribe to a discussion at St. John's, send email to listserv@sjuvm.stjohns.edu, and include the message "subscribe listname." For instance, for the cerebral palsy discussion group, the message should read, "subscribe c-palsy". The following are a selection of St. John's disability groups:

  • ADVOCACY: Advocacy for people with disabilities
  • C-PALSY: Cerebral Palsy
  • D-SPORT: Sports for persons with disabilities
  • DIS-SPRT: Disability support of families
  • MOBILITY: General disabilities discussion
  • PCA: Personal care assistance
  • POLIO: Polio and post-polio syndrome
  • POST-POLIO MED: Q&A about post-polio syndrome
  • TBI-SPRT: Traumatic brain injury support group

Some other subscriber lists related to disability:

ADA Discussion Group

Send the message "subscribe ada-law" to ada-law@listserv.nodak.edu

HandiRide--A discussion of mobility and transportation issues

Send the message "subscribe handiride-l firstname lastname" to handiride-l-request@handinet.org.

Muscular Dystrophy Discussion Group

Send the message "subscribe" to md-list-request@basix.com.

The Parents Chat List--Discussion of parenting with disability

Send the message "subscribe parents chat" to maiser@hoffman.mgen.pitt.edu.

Ventilator Users List

Send the message "subscribe" to vent-users-request@eskimo.com.


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