The following excerpt is taken from Chapter
7
of Life on Wheels: For the Active Wheelchair User, by Gary Karp,
copyright 1999, published by O'Reilly & Associates, Inc.
To order, or get more information about Gary's book, call
(800) 998-9938. Permission is granted to print and
distribute this excerpt for noncommercial use as long
as the above source is included. The information in this
article is meant to educate and should not be used as an
alternative for professional medical care.
A new philosophy known as Universal Design aims to increase independence for
everyone in the home, while keeping the home attractive. When efforts began to
remove architectural obstacles, terms like barrier-free or
handicapped-accessible design were widely used. These are terms that tend to
stigmatize a building, implying it has been somehow compromised or
institutionalized. Increasingly architects and product suppliers are developing
alternatives that fit seamlessly into the overall design, with respect for
aesthetics.
The late Ron Mace was an architect with a private practice and director of the
Center for Universal Design at North Carolina State University. He had polio as
a child. Mace saw that making the world accessible benefits everyone. He saw
that the existing terms did not promote integration and in fact generated
resentment.
Universal Design says, why not change our thinking and design for everyone all
of the time? Let's not call it "design for people with disabilities." Let's
call it "good design."
Proponents of this philosophy speak of a home that can "age in place." As you
and your family members get older and encounter any of the variety of physical
changes humans encounter, your home can remain friendly and usable, or at least
easier to adapt.
Most people eventually experience a disability of some sort, even if only for a
matter of weeks using a wheelchair or crutches. A broken leg or temporary
disease could mean being physically limited for months or years. An entrance
without steps and an accessible bathroom are suddenly useful at such times. The
demographics of the United States are shifting dramatically toward an older
population. As you age, you will value features of Universal Design in a home.
You might be able to stay in your home longer, despite an illness that might
otherwise mean moving to a residential care setting.
More and more, people with disabilities are out in the world, making friends,
raising families. These people will be buying homes and deserve a selection in
the marketplace. It makes good business sense for builders to incorporate
Universal Design principles.
Here I have a big down payment and a pre-approved mortgage, but because I use a
wheelchair I have much, much less to choose from than anybody else. It is
extremely frustrating, because the place where I will live is the key to the
quality of life I want to make for myself. This severely restricted market for
accessible homes is keeping me from my dreams, and I don't appreciate the idea
that I should have to compromise. You'd think that they would want my money.
Universal Design also makes monetary sense. The cost of later modifications is
usually much higher than doing it right in the first place. The price of lever
handles, door closers, grab bars, sinks, accessible showers and tubs, and
shelving modifications in the kitchen will continue to fall as the demand
increases.
Money is a very real issue when you are faced with modifying your home. You
might not be able to afford all of the work it would take to achieve full
access. Tenenbaum notes that you often have to make tough choices:
I worked with a woman recently where we decided that her best solution was to
build an additional room on the first floor, but [the design also] meant she
wouldn't be able to go upstairs to yell at her kids about throwing their
clothes on the floor. It's very hard, because we're being controlled by budget.
Universal access is a goal, but we often have to compromise our goals because
of other constraints.
Universal Design also suggests building for adaptability, an approach referred
to as "handicapped-adaptable." With some foresight and simple measures during
construction, future accessibility needs can more easily be met. For instance,
make sure that walls in bathrooms are reinforced in advance for grab bar
installation. Ron Mace explained:
With adaptable design, they don't have to put the grab bars in. You can just
put them in where someone needs them. Or in the kitchen, the builder puts the
base cabinet under the sink, but makes it removable. He just doesn't bolt it
down. You take a couple of screws out and put it in storage.
Building codes sometimes offer builders an alternative. They can make a certain
percentage of units accessible, or they can make more units adaptable.
Variations in a city depend on local policies and the choices made by housing
developers.
Private homes and accessibility codes
At this time, there is no requirement for private, single-family homes to be
made accessible. The building industry has resisted such provisions, fearing it
will impose excessive expense on them.
Current building methods do not lend themselves to easy accessibility. For
example, the typical style of home-building puts the main floor up at least
several inches to prevent water from flowing in from the ground level, in
theory at least. Homes are also raised to allow a "crawl space" for air to
circulate under the home, again to remove moisture, or to make room for windows
to allow light into a basement space.
When you consider accessibility codes in terms of how legislation would apply
to private homes, the issue gets trickier. On one hand, some people hesitate to
force accessibility on private homes:
People should be allowed to build the home they want. Maybe I, in my
wheelchair, can't deal with a sunken living room, but that should not prevent
someone from having one, if that is what they want. We have no business telling
people how to build their homes.
This is coming from a wheelchair user who hates visiting people in homes that
are uncomfortable or difficult for me. But I would never tell someone that they
must build their house to suit me.
On the other hand, millions of people with disabilities have to live someplace,
and in the present environment have very little to choose from. You could be
forced to leave a neighborhood you prefer, or have to spend extra money for
adaptations, just because there are no requirements for basic features of
access.
But why not require that all new private homes be required to meet minimum
standards of accessibility, rather than just public or apartment buildings? We
don't accept that someone can just decide, "Oh, I don't feel like having my new
house meet all of those expensive fire-safety and structural integrity
requirements." The public interest is said to be best served by ensuring a
minimum standard of safety for both the first residents and any future
residents. Is it unreasonable to expect this of basic accessibility?
Access questions extend beyond your own home. Your life takes you to the homes
of relatives and friends. People throw parties. Someone you love might need
help because they are not well. The "visitability" of other homes is a
significant factor in the quality of your life.
When I visit a home where I need a lift up the steps or have to control my
liquid intake for lack of a bathroom I can use, my hosts are very apologetic.
Consistently, people wish that they could provide a setting that works for me.
Some will go out of their way, as a dear cousin of mine recently did by
building a portable ramp for the garage entry.
Visitability is always important. When I go to visit my great-aunt and uncle in
Illinois they always put up a ramp at one door and hook up the hand-held
shower.
To date, two American cities--Atlanta, Georgia and Austin, Texas--have
established a visitability ordinance.
You will decide how much you hope or expect others to accommodate you. Friends
and relatives also struggle with money issues, and if they live in multi-story
homes there will be only so much they can do. They will need your help to
understand your needs. Perhaps you can even offer some guidance on specific
measures they can take, do a little research into products, and share a
creative process with them to optimize your access as much as possible.
Will it look like a hospital?
Many people fear that making their home accessible will make it look
institutional and damage future resale value. Ramps, grab bars, lowered
switches and raised outlets, or kitchen counters that leave space for leg room
all raise the specter of not being able to sell the home when the time comes.
It is a fallacy that an accessible home must become unattractive to potential
buyers. Remember, when you think in terms of Universal Design you are making
your home safe, comfortable, and convenient for everyone. Because the design
quality of products--from grab bars to kitchen and storage systems--has
improved, your home can remain attractive and not look like a hospital.
Building contractor Louis Tenenbaum puts it simply:
Beauty really is in the eye of the beholder. One person's institutional is
another person's attractive. Personally, I think what's ugly is breaking a hip
because the environment was unsafe.
Adapting what's there
Most people with disabilities will be faced with adapting an existing home or
apartment. Adaptation for access is not what architects and builders are
thinking about when they design and construct housing.
The degree of adaptation you can make depends on:
- What you can afford
- What control you have over your home--owned or rented
- The existing design features of your home and/or property
Adaptation might not be that big a deal if you are fortunate to live in a home
that doesn't need a lot of changes.
I was fairly lucky that when I was disabled both my parents' houses needed only
minor modifications to be made accessible ( bars, hand-held shower, wider
bathroom door). Both houses were one story with no more than one step to get
in.
Start with measures that cost nothing, such as moving furniture around to make
space and teaching your family to not leave items where they impede your path.
You might move to another bedroom in the home, rearrange kitchen cabinets, or
remove the door to the bathroom in the master bedroom. It might even be
necessary to accept not having access to certain parts of your home without
assistance.
Next, there are measures which don't cost much money. Wooden ramps can be built
easily; portable, folding metal ramps are available at reasonable cost.
Doorknobs can be converted with inexpensive lever handles, and door hinges can
be changed to a hinge type that pivots the door aside so the door's thickness
no longer blocks your way. Grippers, reachers, and various other tools help to
extend your reach and use what strength you have. Remote control systems allow
you to turn almost anything on or off in the home, as well as open doors or
answer the telephone.
More expensive is the construction cost associated with major work such as
widening doors, pouring a concrete ramp and grading the land outside, replacing
a bathtub with a roll-in shower, or adding a new room to the house. You might
also consider taking down a wall that is not load-bearing--perhaps between the
dining room and den--to open up space for ease of movement. Depending on your
income and where you live, tax credits might be available for some of these
expenses. Some banks extend long-term loans with minimal down payments for
disability-related construction.
Take care not to use up all your resources on one adaptation. If you use all
your money to build an accessible addition, you won't have funds left for
changes in other parts of the house. The result could be that you are isolated
in your shiny new wing of the home, unable to freely interact with the rest of
the household.
If you are doing substantial work or buying significant new items such as major
appliances, this is a chance to improve your home with quality construction and
well-made products which will last, with a minimum of maintenance. Adapting a
home for access can be a chance to increase the convenience of your home for
everyone, and improve its long-term value.