As Honna Janes-Hodder's 7-year-old son lay dying after
battling neuroblastoma for four years, he gave her one last
gift. Though deep in a coma, Matthew said, "I am not afraid."
She kissed him and made three promises: I will love you
forever, I will miss you for always, and I will never stop
fighting for children like you. He died 45 minutes later.
Honna has kept her promises. With Nancy Keene, she has written
Childhood
Cancer: A Parent's Guide to Solid Tumor Cancers. More than
3,000 children are diagnosed with these diseases every year.
Childhood cancer and its treatment can have devastating effects
on family, friends, schoolmates, and the larger community. This
is the first book ever to address the problems faced by families of
children with solid tumors. Honna and Nancy, whose daughter is
a leukemia survivor, combine personal experiences, advice from
over 100 families, and the latest medical information to publish a
unique and comprehensive book.
Reviewed by some of the world's best known doctors who conduct
research on behalf of children with solid tumors,
Childhood
Cancer provides parents with:
- A basic understanding of medical terminology, chemotherapy,
and common side effects of treatment.
- Information on diagnosis through end of treatment, as well
as sections on relapse and bereavement.
- Practical advice on how to deal with procedures, hospitalization, s
chool, family and friends, and social and financial issues.
- Advice on how to work effectively with medical personnel.
- Stories from parents describing their emotional ups and downs
and how they molded their family lives around hospitalizations.
Nancy Keene's life changed on Valentines' Day, 1992 when her
three-year-old daughter was diagnosed with acute lymphoblastic
leukemia. Since then, she's spent a majority of her time advocating
for and supporting her daughter (who is now 11 years old), as well
as sharing her knowledge with other parents who are experiencing
similar situations with their children.
Newly revised and updated,
Childhood
Leukemia: A Guide for Families, Friends, and Caregivers by Nancy
Keene is considered the bible for families of children with
leukemia. The first edition is relied upon by hundreds of parents
and caregivers as the definitive source of information on
childhood leukemia. It is so well known on the Internet that
families of children with leukemia who join cyber support groups
are simply told to "Get Nancy's book."
This new edition includes:
- Clear explanations of state-of-the-art treatments, including bone
marrow transplants, new chemotherapy drugs, and new drugs and
methods for coping with side effects.
- Technical medical information, practical advice, and many
real-life stories from parents and children.
- A treatment history "record keeper" at the back of the book to
summarize treatment information that will be needed by future caregivers
and to keep as a permanent record.
- Extensive listings of updated resources on sources for medical
information, emotional support, and financial assistance.
- Complete listings of books, videos, and Internet resources.
- A foreword by Dr. F. Leonard Johnson, Chief of Pediatric
Hematology/Oncology at Oregon Health Sciences University.
About the Authors
Honna Janes-Hodder is the founder of ChildCan, The Childhood
Research Association of Newfoundland and Labrador. She manages
most of the pediatric discussion groups for ACOR, the Association
of Cancer Online Resources, Inc. and is the administrator of five
online discussion groups, providing support and reliable information
to families dealing with childhood cancers globally.
Nancy Keene is one of the original developers of the Patient-Centered
Guides series. She has been involved with the medical world for over
two decades, as a caregiver and a patient. Keene is the author of
four books,
Childhood Cancer,
Childhood
Leukemia,
Working with
Your Doctor, and
Your Child
in the Hospital.
Both authors are considered experts in the medical world and
are patient advocates in the Children's Cancer Group, a large
organization of pediatric oncology physicians and researchers. As
mothers, both have experienced the pain of having a child with
a serious illness.
Childhood
Cancer: A Parent's Guide to Solid Tumor Cancers
by Honna Janes-Hodder and Nancy Keene
$24.95, 540 pages, paperback
ISBN: 1-56592-531-9
PUBLICATION DATE: October 1999
Childhood
Leukemia: A Guide for Families, Friends & Caregivers, 2nd
Edition
by Nancy Keene
$24.95, 568 pages, paperback
ISBN: 1-56592-632-3
PUBLICATION DATE: October 1999
About Patient-Centered Guides
Patient empowerment is the central theme at the core of the
Patient-Centered Guides series. We believe that people are
empowered when they have the knowledge and skills to partner
with their doctor or healthcare provider to get the best medical
care possible.
We publish books that contain clear, concise, easy to understand
information about the medical, practical and emotional aspects of
health issues. All of our authors are experts in specific conditions
and diseases and are the driving forces behind building strong and
networked communities of patients, families and caregivers.
In addition to our books, we publish information
on the Web. Our
site is an extension of our mission to empower individuals to become
informed health-conscious consumers.
Patient-Centered Guides is a division of O'Reilly & Associates, Inc.
O'Reilly is recognized worldwide for its technical books that fill a
void and provide value to people who are experiencing information
pain. O'Reilly publishes books that make a difference in people's lives.
