This book is offered as a layperson's guide to the lived
experience of non-Hodgkin's lymphomas (NHL). It could be used
easily by anyone who wanted more information about NHL, such as
patients, friends or loved ones of patients, or nonmedical
personnel involved in the care of those with this illness. This
book would be helpful at any point in living with the disease,
whether it be coping with the initial shock of diagnosis, making
sense of the past, or negotiating any twists and turns along the
way. The author has no formal medical background but possesses a
wealth of firsthand knowledge of the disease. Johnston became an
expert when caring for both her mother and husband, who are
long-term survivors of lymphomas. In addition, she used patient
vignettes for illustration throughout. Non-Hodgkin's Lymphomas is
one of a group of patient-centered guides offered by this
publisher, each of which deals with a different health-related
problem.
The text is well presented as it begins by stating who should use
the book and offers help in how to go about doing so. Logically
presented in a step-by-step format, the text starts with how a
diagnosis is made. It proceeds to tests that are necessary and
what they will entail. The book discusses the types of lymphomas
and staging in concrete, accurate terms and why this information
is of paramount importance. Other chapters in this
well-researched text include those about chemotherapy, radiation,
and early and late side effects. The whole spectrum of illness,
including diagnosis, remission and other therapies, potential
relapse, and death, is described.
The most valuable chapters of this book may be the ones that deal
with less concrete topics. These chapters present topics that can
help optimize and personalize patient care. Topics include
helping the reader speak effectively with healthcare providers,
how to seek out other sources of information, how to maximize
social support, and how and when to get a second opinion. The
chapters about the role of stress in illness, the use of
complementary therapies, and advice regarding finances and
insurance also are useful. Above all, the book constantly reminds
readers to talk to their doctors because they are the best
sources of information.
Potential deficits with this book are few but worth mentioning.
Because it is more in-depth than most patient-centered
literature, those who are newly diagnosed and overwhelmed or
those who are less literate may be daunted by the material The
book's cost of about $20 (based on an online book search) may be
prohibitive to some. The book also has the underlying assumption
that patients live in an area where a second opinion is possible
or are free to travel for a second opinion. These things aside,
the book is an invaluable tool for anyone whose life is affected
by NHL and is an excellent resource for those who cope by gaining
knowledge.