The following resources related to Hydrocephalus are from the book
Hydrocephalus: A Guide for Patients, Families, and Friends by
Chuck Toporek & Kellie Robinson, copyright 1999, published O'Reilly &
Associates, Inc. To order, or get more information about this book,
call 1-800-998-9938. Permission is granted to print and distribute
this list of resources for noncommercial use as long as the above
source is included. This information is meant to educate andshould not
be used as an alternative for professional medical care.
The following list of web site addresses is intended to provide you
with additional resources to locate information about hydrocephalus
and related topics. Many of the organizations in this list have web
sites as well.
Beth Israel Medical Center - Hydrocephalus
http://nyneurosurgery.org/child/hydrocephalus/hydrocephalus.htm
Hydrocephalus Brochure
(Available from the American Association of Neurological Surgeons)
http://www.aans.org/pubpages/patres/hydrobroch.html
Hydrocephalus Facts & Links
http://members.nova.org/~twinkee/HydroLinks.htm
Hydrocephalus Index, Bowman Gray/Wake Forest
http://www.bgsm.edu/bgsm/surg-sci/ns/hyceph.html
Hydrocephalus Project at the Cleveland Clinic Foundation
www.clevelandclinic.org/neurosurgery
Hydrocephalus, Syrinx, Myelomeningocele Resource Guide
http://neurosurgery.mgh.harvard.edu/hyd-rsrc.htm
Spina Bifida, Syrinx, Hydrocephalus Home Page at Massachusetts General Hospital/Harvard
Medical School
http://neurosurgery.mgh.harvard.edu/pedi-hp.htm
The University of Adelaide, Paediatric Neurosurgery DepartmentHydrocephalus
http://www.health.adelaide.edu.au/paed-neuro/hydro.html
Personal home pages
Chris Riccio's Home Page
http://members.aol.com/CARiccio/
Nancy Bradley's Maternal Hydrocephalus Page
http://members.aol.com/HydroWoman/index.html
Chat rooms and listservs
HYCEPH-L (The Hydrocephalus Listserv)
http://www.geocities.com/HotSprings/Villa/2020/
Hydrohaven Chat Room
http://www.geocities.com/Heartland/6950/HydroHav.html
Massachusetts General Hospital NeurologyNeurology Web-Forum
http://dem0nmac.mgh.harvard.edu/neurowebforum/neurowebforum.html
Americans with Disabilities Act Document Center
http://janweb.icdi.wvu.edu/kinder/
Council for Exceptional Children (CEC)
http://www.cec.sped.org/
National Institute on Disability and Rehabilitative Research (NIDRR)
http://www.ed.gov/offices/OSERS/NIDRR/
National Library Service for the Blind and Physically Handicapped
http://lcweb.loc.gov/nls/nls.html
Office of Special Education and Rehabilitative Services (OSERS)
http://www.ed.gov/offices/OSERS/
OSERS: Office of Special Education Programs (OSEP)
http://www.ed.gov/offices/OSERS/OSEP/
OSERS: IDEA '97 Home Page
http://www.ed.gov/offices/OSERS/IDEA/
Rare Genetic Diseases in Children: Disability Resources Directory
http://mcrcr2.med.nyu.edu/murphp01/disable.htm
U.S. Department of Justice ADA Home Page
http://www.usdoj.gov/crt/ada/adahom1.htm
U.S. Department of Justice: Americans with Disabilities Act (ADA)
http://www.usdoj.gov/crt/ada/pubs/ada.txt
AANS Glossary of Neurosurgical Terms
http://www.aans.org/pubpages/whatis/glossary.html
The Cleveland Clinic Foundation,
Department of Neurological Surgery
www.clevelandclinic.org/neurosurgery
MGH NeurologyNeurology Web-Forum
http://neuro-www.mgh.harvard.edu/forum/
Neurosurgery://On-Call
(American Association of Neurological Surgeons)
http://www.aans.org/
Neurosurgery at Massachusetts General Hospital/Harvard Medical Center
http://neurosurgery.mgh.harvard.edu/
Neurosurgery Links
http://www.wwilkins.com/neurosurgery/0148-396Xlinks.html
Pediatric Neurosurgery%#150;Hydrocephalus
http://cpmcnet.columbia.edu/dept/nsg/PNS/Hydrocephalus.html
Third Ventriculostomy
http://www.neuro.hscsyr.edu/teachfile/3V/3Vtop.html
The University of North Carolina-Chapel Hill,
Division of Neurosurgery
http://sunsite.unc.edu/Neuro/Neuro.html
Imaging (CT, MRI, and radiology)
Joint Program in Nuclear Medicine
http://www.med.harvard.edu/JPNM/
Nuclear Medicine at Children's Hospital, Boston
http://nucmedweb.tch.harvard.edu/
Shields Health Care Group
http://www.shields.com/
What Is Computed Tomography?
(Advanced Research and Applications CorporationARACOR)
http://www.aracor.com/faqs/whatisCT.html
The Whole Brain Atlas
http://www.med.harvard.edu:80/AANLIB/home.html
Shunt manufacturers
Elekta
http://www.elekta.com/
Medtronic: PS Medical
http://www.medtronic.com/neuro/psmedical/
Radionics: Hydrocephalus Shunt Products
http://www.radionics.com/products/hydrocephalus_shunt/
Neuropsychology Central
http://www.premier.net/~cogito/neuropsy.html
Pediatric Neuropsychology in Medial Settings
http://netpsych.com/health/neuropsych.htm
Beth Israel Hospital
Institute for Neurology and Neurosurgery
http://nyneurosurgery.org/inn
Children's Hospital Boston
http://www.childrenshospital.org/
Children's Hospital of Pittsburgh
http://www.chp.edu/
The Children's Hospital of Philadelphia
http://www.chop.edu/
The Hospital for Sick Children
http://www.sickkids.on.ca/
HospitalWeb
http://neuro-www.mgh.harvard.edu/hospitalweb.shtml
Montreal Neurological Institute and Hospital
http://www.mcgill.ca/mni/
Shands for Kids
http://www.shandskids.com/
Centers for Disease Control and Prevention (CDC):
Prevention of Neural Tube Defects (NTDs)
http://www.cdc.gov/nceh/programs/infants/brthdfct/prevent/ntd_prev.htm
Dr. Koop's Community
(by Dr. C. Everett Koop, former U.S. Surgeon General)
http://www.drkoop.com/
MedicineNet
http://www.medicinenet.com/
Mediconsult.com
http://www.mediconsult.com/
National Health Information Resource Center (NHIRC)
http://www.nhirc.org/
OnHealth!
http://www.onhealth.com/
Public Citizen: Health Research Group
http://www.citizen.org/hrg/
ThriveOnline
http://www.thriveonline.com/
Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/
Federation of State Medical Boards (FSMB)
http://www.usmle.org/boards.htm
Health Industry Manufacturers Association (HIMA)
http://www.himanet.com/
Health Policy Sites at George Washington University
http://www.gwu.edu/~ihpp/Hpolicy.html
Legislation: Bills, Amendments, and Laws
http://lcweb.loc.gov/global/legislative/bill.html
National Institutes of Health (NIH)
http://www.nih.gov/
Selected Internet Resources in Health Law and Policy
http://lawlib.slu.edu/centers/hlthlaw/hlthlnk.htm
State Insurance Commissioners
http://www.surrogacy.com/insurance/insurcom.html
THOMASU.S. Congress on the Internet
http://thomas.loc.gov/
GALEN IIThe UCSF Digital Library
http://www.library.ucsf.edu
Internet Grateful Med
http://igm.nlm.nih.gov/
PubMed
http://www.ncbi.nlm.nih.gov/PubMed/
U.S. National Library of Medicine (NLM)
http://www.nlm.nih.gov/
WelchWeb: Welch Medical Library, Johns Hopkins University
http://www.welch.jhu.edu/