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Internet Resources


The following resources related to Hydrocephalus are from the book Hydrocephalus: A Guide for Patients, Families, and Friends by Chuck Toporek & Kellie Robinson, copyright 1999, published O'Reilly & Associates, Inc. To order, or get more information about this book, call 1-800-998-9938. Permission is granted to print and distribute this list of resources for noncommercial use as long as the above source is included. This information is meant to educate andshould not be used as an alternative for professional medical care.


The following list of web site addresses is intended to provide you with additional resources to locate information about hydrocephalus and related topics. Many of the organizations in this list have web sites as well.

Hydrocephalus

Beth Israel Medical Center - Hydrocephalus
http://nyneurosurgery.org/child/hydrocephalus/hydrocephalus.htm

Hydrocephalus Brochure
(Available from the American Association of Neurological Surgeons)
http://www.aans.org/pubpages/patres/hydrobroch.html

Hydrocephalus Facts & Links
http://members.nova.org/~twinkee/HydroLinks.htm

Hydrocephalus Index, Bowman Gray/Wake Forest
http://www.bgsm.edu/bgsm/surg-sci/ns/hyceph.html

Hydrocephalus Project at the Cleveland Clinic Foundation
www.clevelandclinic.org/neurosurgery

Hydrocephalus, Syrinx, Myelomeningocele Resource Guide
http://neurosurgery.mgh.harvard.edu/hyd-rsrc.htm

Spina Bifida, Syrinx, Hydrocephalus Home Page at Massachusetts General Hospital/Harvard Medical School
http://neurosurgery.mgh.harvard.edu/pedi-hp.htm

The University of Adelaide, Paediatric Neurosurgery Department–Hydrocephalus
http://www.health.adelaide.edu.au/paed-neuro/hydro.html

Personal home pages

Chris Riccio's Home Page
http://members.aol.com/CARiccio/

Nancy Bradley's Maternal Hydrocephalus Page
http://members.aol.com/HydroWoman/index.html

Chat rooms and listservs

HYCEPH-L (The Hydrocephalus Listserv)
http://www.geocities.com/HotSprings/Villa/2020/

Hydrohaven Chat Room
http://www.geocities.com/Heartland/6950/HydroHav.html

Massachusetts General Hospital Neurology–Neurology Web-Forum
http://dem0nmac.mgh.harvard.edu/neurowebforum/neurowebforum.html

Disabilities and special education

Americans with Disabilities Act Document Center
http://janweb.icdi.wvu.edu/kinder/

Council for Exceptional Children (CEC)
http://www.cec.sped.org/

National Institute on Disability and Rehabilitative Research (NIDRR)
http://www.ed.gov/offices/OSERS/NIDRR/

National Library Service for the Blind and Physically Handicapped
http://lcweb.loc.gov/nls/nls.html

Office of Special Education and Rehabilitative Services (OSERS)
http://www.ed.gov/offices/OSERS/

OSERS: Office of Special Education Programs (OSEP)
http://www.ed.gov/offices/OSERS/OSEP/

OSERS: IDEA '97 Home Page
http://www.ed.gov/offices/OSERS/IDEA/

Rare Genetic Diseases in Children: Disability Resources Directory
http://mcrcr2.med.nyu.edu/murphp01/disable.htm

U.S. Department of Justice ADA Home Page
http://www.usdoj.gov/crt/ada/adahom1.htm

U.S. Department of Justice: Americans with Disabilities Act (ADA)
http://www.usdoj.gov/crt/ada/pubs/ada.txt

Neurosurgery

AANS Glossary of Neurosurgical Terms http://www.aans.org/pubpages/whatis/glossary.html

The Cleveland Clinic Foundation,
Department of Neurological Surgery

www.clevelandclinic.org/neurosurgery

MGH Neurology–Neurology Web-Forum
http://neuro-www.mgh.harvard.edu/forum/

Neurosurgery://On-Call
(American Association of Neurological Surgeons)
http://www.aans.org/

Neurosurgery at Massachusetts General Hospital/Harvard Medical Center
http://neurosurgery.mgh.harvard.edu/

Neurosurgery Links
http://www.wwilkins.com/neurosurgery/0148-396Xlinks.html

Pediatric Neurosurgery%#150;Hydrocephalus
http://cpmcnet.columbia.edu/dept/nsg/PNS/Hydrocephalus.html

Third Ventriculostomy
http://www.neuro.hscsyr.edu/teachfile/3V/3Vtop.html

The University of North Carolina-Chapel Hill,
Division of Neurosurgery

http://sunsite.unc.edu/Neuro/Neuro.html

Imaging (CT, MRI, and radiology)

Joint Program in Nuclear Medicine
http://www.med.harvard.edu/JPNM/

Nuclear Medicine at Children's Hospital, Boston
http://nucmedweb.tch.harvard.edu/

Shields Health Care Group
http://www.shields.com/

What Is Computed Tomography?
(Advanced Research and Applications Corporation–ARACOR)
http://www.aracor.com/faqs/whatisCT.html

The Whole Brain Atlas
http://www.med.harvard.edu:80/AANLIB/home.html

Shunt manufacturers

Elekta
http://www.elekta.com/

Medtronic: PS Medical
http://www.medtronic.com/neuro/psmedical/

Radionics: Hydrocephalus Shunt Products
http://www.radionics.com/products/hydrocephalus_shunt/

Neuropsychology

Neuropsychology Central
http://www.premier.net/~cogito/neuropsy.html

Pediatric Neuropsychology in Medial Settings
http://netpsych.com/health/neuropsych.htm

Hospitals and medical centers

Beth Israel Hospital
Institute for Neurology and Neurosurgery

http://nyneurosurgery.org/inn

Children's Hospital Boston
http://www.childrenshospital.org/

Children's Hospital of Pittsburgh
http://www.chp.edu/

The Children's Hospital of Philadelphia
http://www.chop.edu/

The Hospital for Sick Children
http://www.sickkids.on.ca/

HospitalWeb
http://neurosurgery.mgh.harvard.edu/webforum.htm

Montreal Neurological Institute and Hospital
http://www.mcgill.ca/mni/

Shands for Kids
http://www.shandskids.com/

Health care information

Centers for Disease Control and Prevention (CDC):
Prevention of Neural Tube Defects (NTDs)
http://www.cdc.gov/nceh/programs/infants/brthdfct/prevent/ntd_prev.htm

Dr. Koop's Community
(by Dr. C. Everett Koop, former U.S. Surgeon General) http://www.drkoop.com/

MedicineNet
http://www.medicinenet.com/

Mediconsult.com
http://www.mediconsult.com/

National Health Information Resource Center (NHIRC)
http://www.nhirc.org/

OnHealth!
http://www.onhealth.com/

Public Citizen: Health Research Group
http://www.citizen.org/hrg/

ThriveOnline
http://www.thriveonline.com/

Government and health care law

Centers for Disease Control and Prevention (CDC)
http://www.cdc.gov/

Federation of State Medical Boards (FSMB)
http://www.usmle.org/boards.htm

Health Industry Manufacturers Association (HIMA)
http://www.himanet.com/

Health Policy Sites at George Washington University
http://www.gwu.edu/~ihpp/Hpolicy.html

Legislation: Bills, Amendments, and Laws
http://lcweb.loc.gov/global/legislative/bill.html

National Institutes of Health (NIH)
http://www.nih.gov/

Selected Internet Resources in Health Law and Policy
http://lawlib.slu.edu/centers/hlthlaw/hlthlnk.htm

State Insurance Commissioners
http://www.surrogacy.com/insurance/insurcom.html

THOMAS–U.S. Congress on the Internet
http://thomas.loc.gov/

Search sites

GALEN II–The UCSF Digital Library
http://www.library.ucsf.edu

Internet Grateful Med
http://igm.nlm.nih.gov/

PubMed
http://www.ncbi.nlm.nih.gov/PubMed/

U.S. National Library of Medicine (NLM)
http://www.nlm.nih.gov/

WelchWeb: Welch Medical Library, Johns Hopkins University
http://www.welch.jhu.edu/


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