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Hydrocephalus: A Guide for Patients, Families, and Friends


Your Child in the Hospital: A Practical Guide for Parents

Working with Your Doctor: Getting the Healthcare You Deserve


Hydrocephalus Center
This Center has been created especially for those with hydrocephalus and their families.
This Month's Articles
[ Archived Articles ]

Treating Hydrocephalus: Part 1. This first of a two-part series looks at the primary means of treating hydrocephalus: the installation of shunt systems. There are articles on how they work, where they can be placed in the body, and how shunts are designed and tested. There is also an article on non-surgical treatments of hydrocephalus.

Coping with Hydrocephalus. This collection of articles looks at ways that families can cope with specific aspects of a diagnosis of hydrocephalus: Neurosurgery for infants and children, Starting a local support group, and Insurance claims and denials.

Getting the Diagnosis: Part 3. The last of a three-part series focuses on the affect on families of a diagnosis of hydrocephalus. In particular, its effect on siblings and on marriage, and how to inform your child of the diagnosis.

Getting the Diagnosis: Part 2. When the diagnosis is made, there is a wide array of possible responses: relief, shock, denial, sadness, anger, fear, and hope. This second of a three-part series focuses on emotional responses to the diagnosis.

Getting the Diagnosis: Part 1. By the time you receive the diagnosis for the condition of hydrocephalus, it is likely that you or your child have already been through a gamut of tests. This first of a three-part series describes the process of being diagnosed with hydrocephalus. Topics include symptoms, getting diagnosed, possible misdiagnoses, and second opinions.

With a diagnosis of hydrocephalus, many people feel their lives have spun out of control. By becoming a well-informed patient or parent, you can learn to deal with the intricacies of hydrocephalus and how it impacts daily life. There are things that you can learn and do that will enhance your chances for a longer and healthier life, as well as allow you to regain a measure of control. This month's articles include:

Resources

  • What is Hydrocephalus?
    This article introduces you to the different types, and primary causes, of hydrocephalus, as well as to the basic physical structures involved.

  • Organizations
    • Hydrocephalus and related disorders (US & Canada)
    • Hydrocephalus (international)
    • Disability and neurological
    • Medical and professional

  • Internet resources
    • Hydrocephalus
    • Disabilities and special education
    • Neurosurgery
    • Neuropsychology
    • Hospitals and medical centers
    • Health care information
    • Government and health care law
    • Search sites

  • Suggested reading
    • Hydrocephalus
    • For children and teens
    • Health care
    • Education
    • Learning disabilities

  • Medical journals

  • Regional medical libraries (US)


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