The following excerpt is taken from Appendix A of
Colon & Rectal Cancer: A Comprehensive Guide for
Patients & Families by Lorraine Johnston, copyright 2000 by
O'Reilly & Associates, Inc. For book orders/information, call
(800) 998-9938. Permission is granted to print and distribute this
excerpt for noncommercial use as long as the above source is
included. The information in this article is meant to educate and
should not be used as an alternative for professional medical care.
Beck, G., ed. Handbook of Colorectal Surgery. Louis, Missouri: Quality Medical Publishing, 1997.
Cohen, A., and S. Winawer, eds. Cancer of the Colon, Rectum, and Anus. New York: McGraw-Hill, Inc., 1995. As of this writing, this is the most current and comprehensive textbook available that is specifically devoted to colorectal cancer. You might be able to find a copy in your doctor's office, a hospital library, or a university library. It can be purchased through any bookstore, including web-based bookstores, by ordering it from the publisher.
Johnston, L. Colon and Rectal Cancer: A Comprehensive Guide for Patients and Families. Sebastopol, CA: O'Reilly & Associates, 2000. This book provides up-to-date and in-depth information to help patients and families participate wisely in treatment decisions. It covers coping with tests and treatment side effects, caring for ostomies, finding support, and other practical issues. Includes many stories and coping techniques from those living with colon cancer.
Levin, B. Colorectal Cancer: A Thorough and Compassionate Resource for Patients and Their Families. New York: American Cancer Society/Random House, 1999.
Miscovitz, P., and M. Betancourt. What to Do If You Get Colon Cancer. New York: John Wiley and Sons, 1997.
Mullen, B., and K. McGinn. The Ostomy Book. Palo Alto, California: Bull Publishing, 1992.
Pezim, M. Colon and Rectal Cancer: All You Need to Know to Take an Active Part in Your Treatment. Vancouver, British Columbia: Intelligent Patient Guide, Ltd., 1992.
Phillips, Robert. Coping with an Ostomy. Wayne, New Jersey: Avery Publishing, 1986.
Phillips, Robin, ed. Colorectal Surgery. London: W. B. Saunders Co. Ltd., 1998.
Wanebo, H., ed. Surgery for Gastrointestinal Cancer: A Multidisciplinary Approach. Philadelphia: Lippincott-Raven, 1997. Another comprehensive textbook.
The Alpha Book on Cancer and Living. Alameda, California: The Alpha Institute, 1993.
Altman, R., and M. Sarg. The Cancer Dictionary. New York: Facts On File, 1992. A good medical dictionary specifically for cancer survivors.
Brenner and Hall. Making the Radiation Therapy Decision. RGA Publishing Group, 1996.
Cancer Rates and Risks, 1996. The National Cancer Institute. (800) 4-CANCER.
Crane, Judy B. How to Survive Your Hospital Stay. Westlake Village, California: The Center Press, 1997.
Cukier, Daniel, and Virginia McCullough. Coping with Radiation Therapy: A Ray of Hope. Los Angeles: Lowell House, 1996.
Dollinger, Rosenbaum, and Cable. Everyone's Guide to Cancer Therapy. Andrews & McMeel, 1994.
Drum, D. Making the Chemotherapy Decision. Los Angeles: Lowell House, 1997.
Dunn, Steve. CancerGuide. Available online at: http://www.cancerguide.org/sdunn_story.html.
Friedman, A., T. Klein, and H. Friedman. Psychoneuroimmunology, Stress, and Infection. New York: CRC Press, 1996.
Glaser, Ronald, and Janice Kiecolt-Glaser. Handbook of Human Stress and Immunity. New York: Academic Press, 1994.
Harpham, Wendy. After Cancer: A Guide to Your New Life. New York: W. W. Norton, 1994.
Harpham, Wendy. Diagnosis: Cancer. New York: W. W. Norton, 1998.
Harpham, Wendy. When a Parent Has Cancer: A Guide to Caring for Your Children. New York: HarperCollins, 1997.
Hoffman, Barbara, ed. A Cancer Survivor's Almanac. Minneapolis: The National Coalition for Cancer Survivorship/Chronimed, 1996.
Inlander, Charles, B., ed. People's Medical Society Health Desk Reference: Information Your Doctor Can't or Won't Tell You. New York: Hyperion, 1996.
Johnson, J., and L. Klein. I Can Cope: Staying Healthy with Cancer. Minneapolis: Chronimed, 1994.
Keene, Nancy. Working with Your Doctor: Getting the Healthcare You Deserve. Sebastopol, California: O'Reilly & Associates, 1997.
Keene, Nancy. Your Child in the Hospital: A Practical Guide for Parents. Sebastopol, California: O'Reilly & Associates, 1997.
Lerner, Michael. Choices in Healing: Integrating the Best of Conventional and Complementary Approaches to Cancer. Cambridge, Massachusetts: The MIT Press, 1996.
McKay, J., N. Hirano, and M. Lampenfeld. The Chemotherapy & Radiation Therapy Survival Guide. New Harbinger Publications, 1998.
The Merck Manual. A vast resource available in either the paper version or at their web site: http://www.merck.com. Many public libraries have a copy of the Merck Manual in their non-circulating reference section.
Murphy, G., L. Morris, and D. Lange, eds. Informed Decisions: The Complete Book of Cancer Diagnosis, Treatment and Recovery. The American Cancer Society/Viking, 1997. A comprehensive guide to the care and treatment of all aspects of all cancers; has an extensive list of organizations that help cancer survivors.
Niebuhr, Bruce. Handbook of Clinical Trial and Epidemiological Research Designs. Available online at:
Olson, Kaye, RN. Surgery and Recovery: How to Reduce Anxiety and Promote Healthy Healing. Traverse City, Michigan: Rhodes and Easton, 1998.
Radiation Therapy and You. A 50-page booklet available from the National Cancer Institute, (800) 4-CANCER.
Schover, L. Sexuality and Fertility after Cancer. New York: John Wiley & Sons, 1997.
Spiegel, David. Living Beyond Limits: New Hope and Health for Facing Life-Threatening Illness. Fawcett Books, 1994.
Youngson, Robert, with the Diagram Group. The Surgery Book. New York: St. Martin's Press, 1993.
Zakarian, Beverly. The Activist Cancer Patient. New York: John Wiley & Sons, 1996.
Zukerman, Eugenia, and Julie Ingelfinger. Coping with Prednisone, and Other Cortisone-Related Medicines. New York: St. Martin's Press, 1997.
Clifford, Christine. Our Family Has Cancer, Too! Pfeifer-Hamilton Publishing, 1997.
Fromer, Margot Joan. Surviving Childhood Cancer: A Guide for Families. American Psychiatric Press, 1995. Written for children.
Harpham, Wendy Schlessel. Becky and the Worry Cup: A Children's Book about a Parent's Cancer. HarperCollins, 1997.
Kohlenberg, Sherry. Sammy's Mommy Has Cancer. Magination, 1993. For preschoolers.
Martin, Ann M. Jessi's Wish (Baby-Sitters Club No. 48). Apple, 1991. Through Danielle, who has cancer, Jessi learns new things about herself.
Trillin, Alice. Dear Bruno. New Press, 1996. A cartoon book about adjusting to cancer, primarily but not exclusively, for children.
Cancer Communication, published by PAACT
Patient Advocates for Advanced Cancer Treatments
1143 Parmelee, NW
Grand Rapids, MI 49504
Phone: (616) 453-1477
PO Box 682268
Franklin, TN 37068
Phone: (615) 790-2400
Living Through Cancer
Document retrieval services can fax or mail you the full text of any published research paper. On the Internet, the Medline service providers HealthGate, Medscape, Helix, PhyNet, PDRnet.Com, SilverPlatter, Ovid On Call, Infotrieve, PaperChase, and others offer full-text services for a fee. Do a Web search on any of these names.
323 Eighth Street, SW
Albuquerque, NM 87102
Phone: (505) 242-3263
Companies that will do medical information searches for you for a fee are:
Phone: (360) 437-2291
The Health Resource, Inc.
Phone: (501) 329-5272
Schine On-Line Services
The National Library of Medicine's MEDLINE database at: http://www4.ncbi.nlm.nih.gov/PubMed/ is the best place to find the published results of studies on cancer treatment and care. It houses more than 9 million research papers. If you need help with searching, you can call the National Library of Medicine at: (800) 272-4787 or (301) 496-6308.
Phone: (800) FIND-CURE
The US National Cancer Institute (NCI), a division of the National Institutes of Health, has a hotline; an enormous web site; and numerous tracts, statements, booklets, and books about cancer treatment and care. Many of the statements about cancer come in two versions: for patients and for physicians. You might prefer to start with the patients' versions, but it's likely that, as you learn more, the physicians' statements will provide better, more detailed answers to your questions. The physicians' information is often part of PDQ, Physicians' Data Query.
Bethesda, MD 20892
Phone: (800) 4-CANCER