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End of Life Resources


The following excerpt is taken from Appendix A of Colon & Rectal Cancer: A Comprehensive Guide for Patients & Families by Lorraine Johnston, copyright 2000 by O'Reilly & Associates, Inc. For book orders/information, call (800) 998-9938. Permission is granted to print and distribute this excerpt for noncommercial use as long as the above source is included. The information in this article is meant to educate and should not be used as an alternative for professional medical care.

Resources for increasing comfort and serenity in the last stage of life are included in this category.

Home and hospice care

Community Health Accreditation Program, Inc.
350 Hudson Street
New York, NY 10014
Phone: (800) 669-9656

Provides a list of accredited home care organizations.

Gentiva Health Services
3 Huntington Quadrangle 2S
Melville, NY 11747
1-888-GENTIVA or 1-888-436-8482
www.gentiva.com

Offers help with all home healthcare services.

National Association for Home Care
519 C Street, NE
Washington, DC 20002
Phone: (202) 547-7424

Represents all home healthcare agencies in the US. They offer publications on selecting home care.

National Hospice Organization
1901 North Moore Street, Suite 901
Arlington, VA 22209
Phone: (800) 658-8898

Offers information on the goals of hospice and how to choose a hospice.

Oley Foundation
214 Hun Memorial
Albany Medical Center A-23
Albany, NY 12208
Phone: (800) 776-OLEY

Offers help with parenteral or enteral nutrition--that is, feeding by IV or stomach tube.

Visiting Nurse Associations of America
3801 East Florida Avenue, Suite 900
Denver, CO 80210
Phone: (800) 426-2547

Provides skilled nurses, aides, and therapists for home care.

Reading material about dying

Basta, Lofty. A Graceful Exit: Life and Death on Your Own Terms. New York: Plenum Press, 1996.

Bernard, Jan, and Miriam Schneider. The True Work of Dying. New York: Avon Books, 1996.

Callanan, Maggie, and Patricia Kelley. Final Gifts: Understanding the Special Awareness, Needs, and Communications of the Dying. New York: Bantam Books, 1996.

Furman, Joan, and David McNabb. The Dying Time: Practical Wisdom for the Dying. New York: Bell Tower, 1997.

Groopman, Jerome. The Measure of Our Days. New York: Viking (Penguin), 1997.

Humphry, Derek. Final Exit: The Practicalities of Self-Deliverance and Assisted Suicide for the Dying. The Hemlock Society, 1997.

Kramp, Erin Tierney, Douglas H. Kramp, and Emily P. McKhann. Living with the End in Mind: A Practical Checklist fort Living Life to the Fullest by Embracing Your Mortality. Three Rivers Press, 1998.

Kubler-Ross, Elisabeth. On Death and Dying. New York: Macmillan Publishing, 1969.

Kubler-Ross, Elisabeth. Death: The Final Stage of Growth. New York: Simon and Schuster, 1975.

Kubler-Ross, Elisabeth. To Live Until We Say Good-bye. New York: Fireside (Simon and Schuster), 1978.

Kubler-Ross, Elisabeth. Living with Death and Dying. New York: Touchstone (Simon and Schuster), 1981.

Lattanzi-Licht, Marcia, John Mahoney, and Galen Miller. The Hospice Choice: In Pursuit of a Peaceful Death. New York: Fireside (Simon and Schuster), 1998.

McPhelimy, Lynn. In the Checklist of Life: A Working Book to Help You Live & Leave Life. A. A. I. P. Pub. Co., 1998.

Nuland, Sherwin. How We Die: Reflections on Life's Final Chapter. New York: Alfred A. Knopf, 1993.

Ray, M. Catherine. I'm With You Now: A Guide Through Incurable Illness for Patients, Families, and Friends. New York: Bantam Books, 1997.

Weenolsen, Patricia. The Art of Dying. New York: St. Martin' s Press, 1996

Books about dying for children

Buscaglia, Leo. The Fall of Freddie the Leaf. New York: C.B. Slack, 1982.

Hitchcock, R. Tim's Dad: A Story about a Boy Whose Father Dies. Springfield, Illinois: Human Services, 1988.

Holden, L. D. Gran-Gran's Best Trick: A story for children who have lost someone they love. New York: Magination, 1989.

Krementz, Jill. How It Feels When a Parent Dies. New York: Alfred A. Knopf, 1981.

LeShan, Ed. Learning to Say Good-bye: When a Parent Dies. New York: Macmillan, 1976.

O'Toole, Donna. Aarvy Aardvark Finds Hope. Burnsville, North Carolina: Celo Press, 1988.

Vigna, J. Saying Good-Bye to Daddy. Morton Grove, Illinois: Albert Whitman, 1991.

White, E.B. Charlotte's Web. New York: Harper & Row, 1952.


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