PATIENT-CENTERED GUIDES


Arrow Catalog
Arrow Patient Centers
Home
Arrow Autism Center Home

New book by
Mitzi Waltz,
Autistic Spectrum Disorders:

Autistic Spectrum Disorders

Other books by Mitzi Waltz:

Obsessive Compulsive Disorder

Bipolar Disorders

Adult Bipolar Disorders

Tourette's Syndrome

Autism Center

Books and Other Resources


The following excerpt is taken from Appendix A of Autistic Spectrum Disorders: Finding a Diagnosis and Getting Help by Mitzi Waltz, copyright 2002 by O'Reilly & Associates, Inc. For book orders/information, call 1-800-998-9938. Permission is granted to print and distribute this excerpt for noncommercial use as long as the above source is included. The information in this article is meant to educate and should not be used as an alternative for professional medical care.

The books, pamphlets, and other resources listed here can help you further explore areas of interest related to autistic spectrum disorders. We have included addresses for printed materials that are not usually available in stores or libraries; otherwise, you should be able to find these items in your local library or via interlibrary loan, or be able to purchase them in regular or online bookstores.

Autistic spectrum disorders

These books and publications are guides to aspects of autistic spectrum disorders.

Attwood, Tony. Asperger's Syndrome: A Guide for Parents and Professionals. London: Jessica Kingsley Publishers, 1998.

Autism Research Institute. Autism Research Review International (ARRI). This informative newsletter summarizes medical study results, and includes reports on traditional and alternative medicine for autistic symptoms. Available from ARI at 4182 Adams Avenue, San Diego, CA 92116.

Baron-Cohen, Simon, MD, and Bolton, Patrick, MD. Autism: The Facts. Oxford, UK: Oxford University Press, 1995.

Bashe, Patty R., and Kirby, Barb. The OASIS Guide to Asperger Syndrome. New York: Crown Publishing, 2001.

Cohen, Shirley. Targeting Autism: What We Know, Don't Know, and Can Do to Help Young Children with Autism and Related Disorders. Berkeley, CA: University of California Press, 1998.

Gerlach, Elizabeth. Autism Treatment Guide. Eugene, OR: Four Leaf Press, 1996. This book by a parent offers practical suggestions for addressing difficult symptoms and behaviors.

Kephart, Beth. A Slant of Sun: One Child's Courage. New York: Norton, 1998. This is a mother's memoir of raising a son with PDD-NOS.

Kozloff, Martin A. Reaching the Autistic Child: A Parent Training Program. Cambridge, MA: Brookline Books, 1998.

Leicestershire County Council and Fosse Health Trust. Autism: How to Help Your Young Child. London: National Autistic Society, 1995. This is an excellent introductory booklet for UK parents with a newly diagnosed child.

Schopler, Eric, and Gary B. Mesibov, editors. High-Functioning Individuals with Autism (Current Issues in Autism). New York: Plenum Publishing, 1992.

Sperry, Virginia Walker, and Sally Provence. Fragile Success: Nine Autistic Children, Childhood to Adulthood. 2nd edition. Baltimore, MD: Paul H. Brookes Publishing, 2000. This book offers fascinating profiles written over a period of years, including one follow-up report by a young man with autistic tendencies who is also profiled as a child.

Tantam, Digby. A Mind of One's Own: A Guide to the Special Difficulties and Needs of the More Able Person with Autism or Asperger's Syndrome. London: National Autism Society, 1991.

Wing, Lorna. Autistic Spectrum Disorders: A Guide to Diagnosis. London: National Autistic Society, 1993. This diagnostic guide is also available on tape.

Books by adults with ASDs

Jessica Kingsley Publishers, a specialty publishing company, has published more books by people with ASDs. Its catalog is online at http://www.jessicakingsley.com.

Gerland, Gunilla. A Real Person: Life on the Outside. London: Souvenir Press, 1997.

Grandin, Temple. Thinking in Pictures, and Other Reports from My Life with Autism. New York: Vintage Books, 1996.

Grandin, Temple, and Margaret M. Scariano. Emergence: Labeled Autistic. New York: Warner Books, 1996.

Williams, Donna. Nobody, Nowhere: The Extraordinary Autobiography of an Autistic. New York: Avon Books, 1994.

Children's books about ASDs

Choose among these books for a gentle introduction to autistic spectrum disorders for siblings, young relatives, and classmates. Another good choice for helping young children understand the maddeningly literal thinking patterns common in individuals on the spectrum is the Amelia Bedelia book series by Peggy Parish.

Amenta, Charles A., III. Russell Is Extra Special: A Book About Autism. Washington, DC: Magination Press, 1992.

Gartenberg, Zachary M. Mori's Story: A Book About a Boy with Autism. Minneapolis: Lerner Publications, 1998. Writeen by a grade-school student about his brother-and very good.

Gerland, Gunilla. Finding Out About Asperger Syndrome, High Functioning Autism and PDD. London: Jessica Kingsley Publishers, 2000. Gerland's book is aimed at children who want to know more about their own diagnosis.

Gold, Phyllis-Terri. Please Don't Say Hello. New York: Human Sciences Press, 1986.

Gottlieb, Eli. The Boy Who Went Away. New York: St. Martin's Press, 1997.

Katz, Illana, and Dr. Edward Ritvo. Joey and Sam: A Heartwarming Storybook About Autism, a Family, and a Brother's Love. Los Angeles: Real Life Story Books, 1993.

Lears, Laurie. Ian's Walk: A Story About Autism. Morton, IL: Albert Whitman & Company, 1998.

Saguisag, Lara. There's a Duwende in My Brother's Soup. Manila: Lampara Books, 2001. This bilingual book in Filipino and English has super illustrations. It's a funny, sweet story about a sister's view of her brother's autism, and her attempt to understand his world.

Thompson, Mary. Andy and His Yellow Frisbee. Rockville, MD: Woodbine House, 1996.

Watson, Esther. Talking to Angels. New York: Harcourt Brace, 1996.

Werlin, Nancy. Are You Alone on Purpose? New York: Houghton Mifflin, 1996.

Web sites about ASDs

Much information is also available on the web sites of autism organizations listed in Appendix B, Support and Advocacy, and research and treatment centers, listed in Appendix C, Research and Testing Facilities.

Autism Resources
http://www.autism-resources.com/
Compiled by the manager of the St. John's Autism list, this includes a comprehensive book list, advice, and much more.

Autism Research Institute
http://www.autism.com/ari
See the ARI Publications List for a wide variety of ARI pamphlets, papers, books, and videotapes on subjects related to autistic spectrum disorders.

The Maze: Jypsy's Autism Links
http://www.isn.net/~jypsy/autilink.htm
Quite possibly the largest collection of addresses for autism-related web sites around the world, and served up with a healthy helping of humor.

Online Asperger's Syndrome Information and Support
http://www.udel.edu/bkirby/asperger/
O.A.S.I.S. is Information Central for issues related to Asperger's syndrome.

"A Tiger by the Tail"
http://members.aol.com/bertvan/index.htm
This is a mother's story of raising an autistic child in the bad old days.

General disability

Exceptional Parent
555 Kinderkamack Road
Oradell, NJ 07649-1517
(201) 634-6550
Fax (201) 634-6599
http://www.eparent.com/
This magazine for parents of children with disabilities is an invaluable resource. Most issues are constructed around a theme, such as transition planning, mobility, or special education. The parent-to-parent letters section is especially useful for families trying to identify or find others with a rare disability.

Massachusetts General Hospital Neurology Forums
http://neuro-www.mgh.harvard.edu/
This web site features discussion groups (live and bulletin board-style) on almost every known neurological disorder.

Health care and insurance

American Association on Mental Retardation Publications Center. Health Care Financing for Severe Developmental Disabilities. Monograph. 444 N. Capitol Street NW, Suite 846, Washington, DC 20001-1512, (202) 287-1968 or (800) 424-3688, fax (202) 387-2193, aamr@pmds.com.

Beckett, Julie. Health Care Financing: A Guide for Families. Iowa City: National Maternal and Child Health Resource Center. This overview of the health care financing system includes advocacy strategies for families and information about public health insurance in the US. University of Iowa, Iowa City, IA 52242, (319) 335-9073.

The Disability Bookshop. How to Get Quality Care for a Child with Special Health Needs: A Guide to Health Services and How to Pay for Them. P.O. Box 129, Vancouver, WA 98666-0129, (206) 694-2462 or (800) 637-2256.

Larson, Georgianna, and Judith Kahn. Special Needs/Special Solutions: How to Get Quality Care for a Child with Special Health Needs. St. Paul, MN: Life Line Press, 2500 University Avenue, St. Paul, MN 55141.

McManue, Margaret. Understanding Your Health Insurance Options: A Guide for Families Who Have Children with Special Needs. Bethesda, MD: ACCH. This guide covers health care financing, insurance coverage, and long-term planning. 7910 Woodmont Avenue, Suite 300, Bethesda, MD 20814, (301) 654-6549.

Neville, Kathy. Strategic Insurance Negotiation: An Introduction to Basic Skills for Families and Community Mental Health Workers. Boston: Federation for Children with Special Needs. Single copies of this pamphlet are available at no cost, and it is very helpful if your insurance company insists on forcing you to use the mental health system rather than your regular medical benefits for care. CAPP/NPRC Project, 95 Berkeley Street, Suite 104, Boston, MA 02116.

Oreck, Stephen. How to Get the Most Money Out of Your Health Insurance(pamphlet). Medic Publishing, P.O. Box 89, Redmond, WA 98073, (206) 881-2883.

Peterson, Robert, and David Tenenbaum. Fighting Back: Health Insurance Denials. Madison, WI: Center for Public Representation. This book can help you get better coverage and combat claims denials. 121 S. Pinckney Street, Madison, WI 53703, (800) 369-0338.

Association of Maternal and Child Health Programs
1220 19th Street NW, Suite 801
Washington, DC 20036
(202) 775-0436
Fax (202) 775-0061
info@amchp.org
http://www.amchp1.org/
Contact AMCHP to locate your state's Children with Special Health Care Needs Program.

National Association of Insurance Commissioners
2301 McGee Street, Suite 800
Kansas City, MO 64108-2604
(816) 842-3600
http://www.naic.org/splash.htm
Contact NAIC to locate your state insurance commissioner, who can tell you about health insurance regulations in your state regarding ASDs.

Parenting and siblings

The Sibling Support Project
Children's Hospital and Medical Center
P.O. Box 5371, CL-09
Seattle, WA 98105
(206) 527-5712
Fax (206) 527-5705
Contact: Donald Meyer, mdj9@qwest.net
http://www.chmc.org/departmt/sibsupp/
This group offers information about the Sibshops support group project and the online support lists SibKids and SibNet.

Gray, David E. Autism and the Family: Problems, Prospects, and Coping with the Disorder. Springfield, IL: Charles C Thomas Publishers, 1998.

Greenspan, Dr. Stanley I., with Jacqueline Salmon. The Challenging Child.. Reading, MA: Addison-Wesley, 1995. This book introduces Dr. Greenspan's concepts about tailoring interventions to each specific child.

Greenspan, Dr. Stanley I., and Serena Wieder, with Robin Simons. The Child with Special Needs. Reading, MA: Addison-Wesley, 1998. Highly recommended for all parents and professionals working with people who have ASDs. Greenspan explains floor-time play therapy, and discusses how to match it to your child's personality, physical needs, and diagnosis.

Kurcinka, Mary Sheedy. Raising Your Spirited Child. Reprint edition. New York: Harper Perennial Library, 1992. Written for parents of nondisabled but "difficult" children, this is nevertheless an excellent parenting guide to have on hand. It covers sensory issues, feeding problems, and more. An accompanying parent workbook is also available.

Meyer, Donald, and Patricia Vadasy. Living with a Brother or Sister with Special Needs. Seattle: University of Washington Press, 1996.

Meyer, Donald, editor. Views from Our Shoes: Growing up with a Brother or Sister with Special Needs. Rockville, MD: Woodbine House, 1997.

Meyer, Donald, editor. Uncommon Fathers: Reflections on Raising a Child with a Disability. Rockville, MD: Woodbine House, 1995. Naseef, Robert A. Special Children, Challenged Parents: The Struggles and Rewards of Raising a Child with a Disability. New York: Birch Lane Press, 1997.

Schopler, Eric, editor. Parent Survival Manual: A Guide to Crisis Resolution in Autism and Related Developmental Disorders. New York: Plenum Publishing, 1995. Based on the TEACCH model, this book provides concrete suggestions for dealing with specific problems and general issues.

Stehli, Annabel, editor.Dancing in the Rain: Stories of Exceptional Progress by Parents of Children with Special Needs. Westport, CT: Georgiana Organization, 1995.

Special education

For information about local school programs, consult both parent groups and advocacy organizations in advance. They can usually tell you about specific schools or programs that have been successful in the past-and warn you away from those that may be detrimental to your child. National autism and disability advocacy groups can also help. The following are general special education resources, including information for parents and about pedagogical techniques. For more, see "Specific therapeutic interventions," later in this Appendix.

Anderson, Winifred, Stephen Chitwood, and Dierdre Hayden. Negotiating the Special Education Maze: A Guide for Parents and Teachers. 3rd edition. Rockville, MD: Woodbine House, 1997. Well-written and very complete, this is a good "starter kit" for beginners.

Dornbush, Marilyn P., and Sheryl K. Pruitt. Teaching the Tiger: A Handbook for Individuals Involved in the Education of Students with Attention Deficit Disorders, Tourette Syndrome, or Obsessive Compulsive Disorder. Duarte, CA: Hope Press, 1995. This is a wonderful book, full of practical suggestions, organizing aids, and ideas for teachers, parents, and students. Despite the title, it's very applicable to children with ASDs.

Fouse, Beth. Creating a Win-Win IEP for Students with Autism. Arlington, TX: Future Horizons, 1996.

Fullerton, Ann, editor.Higher Functioning Adolescents and Young Adults with Autism: A Teacher's Guide. Austin, TX: ProEd, 1996.

Koegel, Robert L., and Lynn Kern Koegel, editors. Teaching Children with Autism: Strategies for Initiating Positive Interactions and Improving Learning Opportunities. Baltimore: Paul H. Brookes Publishing, 1996.

National Autistic Society. Schools, Units, and Classes. London: NAS, 1998. This list of specialist schools and units (self-contained classrooms) in the UK for children with autism also includes addresses of county education councils.

Peeters, Theo. Autism: From Theoretical Understanding to Educational Intervention. Lewisville, TX: J.A. Majors Company, 1997. This book explains the techniques used in TEACCH programs.

Powell, Stuart, and Peggy Ahrenhold Gallagher. Autism and Learning: A Guide to Good Practice. London: David Fulton Publishers, 1997.

Quill, Kathleen Ann, editor. Teaching Children with Autism: Strategies to Enhance Communication and Socialization. Albany, NY: Delmar Publications, 1995.

Simpson, Richard L., and Brenda Myles, editors. Educating Children and Youth with Autism: Strategies for Effective Practice. Austin, TX: ProEd, 1998.

Wright, Peter W. D., and Wright, Pamela. Wrightslaw: Special Education Law. Hartfield, VA: Harbor House Law Press, 1999.

Wright, Peter W. D., and Wright, Pamela.Wrightslaw: From Emotions to Advocacy: The Special Education Survival Guide. Hartfield, VA: Harbor House Law Press, 2001. Both "Wrightslaw" titles are packed with essential information on special education law, advocacy tactics, and IEP tips.

Families for Early Autism Treatment (FEAT)
http://www.feat.org
This web site contains much information about ABA, and also has a copy of the excellent and very comprehensive California Education Department report "Best Practices for Designing and Delivering Effective Programs for Individuals with Autistic Spectrum Disorders."

HEATH: The National Clearinghouse on Postsecondary Education for Individuals with Disabilities
http://www.heath.gwu.edu/
This web site focuses on college opportunities for people with physical or learning disabilities.

Special Education and Disabilities Resources
http://www.educ.drake.edu/rc/sp_ed_top.html
This web site features information and links on US special education law, assistive technology, and related topics.

Childproofing

These are just some of the companies that sell child safety devices.

Childproofers Online
(314) 962-2229
info@childproofers.com
http://www.childproofers.com/

Child Safety Store
1085 SW 15th Avenue, E-3
Delray Beach, FL 33444
(561) 272-8242
Fax (561) 272-8289
http://www.childsafetystore.com

The Safety Store
P.O. Box 7227
Charlottesville, VA 22906-7227
(434) 973-8030 or (888) 723-3897
http://www.safetystore.com/

Special needs clothing

These companies (and many others) carry clothing designed for people who have difficulty with fasteners, mobility problems, special toileting needs, and so on. A few of the catalogs listed include shoes, which tend to be a special problem. Slip-ons or styles with Velcro closures may be available locally; alternatively, there are a variety of items that can replace regular laces, including lace-in Velcro closures and curly elastic laces that bounce shut.

Adrian's Adaptive Closet
29571 Monarch Drive
San Juan Capistrano, CA 92675
(800) 831-2577
Fax (714) 364-4380
adrians@infostations.com
http://www.adrianscloset.com/

E-Z Clothes
P.O. Box 213
Tupelo, MS 38802
(800) 320-7889

Personal Touch Health Care Apparel Inc.
P.O. Box S
Brooklyn, NY 11223
(718) 375-1703 or (888) 626-1703
Fax (718) 627-0200
info@nursinghomeapparel.com
http://www.nursinghomeapparel.com/
This company has adult clothing only, including styles with easy
closures.

Restart Gear
(61) 3 9781 2533
Fax (61) 3 9781 2544
http://findit.cowleys.com.au/clients/restart.htm
This firm offers very hip Australian designs for people with disabilities.

Special Clothes Inc.
P.O. Box 333
Harwich, MA 02645
(508) 896-7939
Specialclo@aol.com
http://www.special-clothes.com/

Specific therapeutic interventions

Here are some resources related to interventions discussed in this book. Web sites listed earlier may also contain useful links to online information.

Diet, vitamins, and allergy-related interventions

The Autism Research Institute's web site ( http://www.autism.com/ari) and publications list have a wealth of information on these topics, as does Allergy Induced Autism in the UK ( http://www.demon.co.uk/charities/AIA/aia.htm). There are more resources for people on casein-free and gluten-free diets in books written for people with celiac disease.

Callahan, Mary. Fighting for Tony. New York: Simon & Schuster, 1987. A mother's story of "recovering" her autistic son, whose behavior improved dramatically with dietary changes.

Crook, William G., MD. The Yeast Connection Handbook. Jackson, TN: Professional Books, 1997.

Jackson, Luke. A User Guide to the GF/CF Diet for Autism, Asperger Syndrome and ADHD. London: Jessica Kingsley Publishers, 2001. Featuring kid-tested GF/CF recipes and written by a highly articulate teen with AS, this is easily the most engaging and user-friendly intro to dietary interventions.

LeBreton, Marilyn. Diet Intervention and Autism: Implementing the Gluten Free Casein Free Diet for Autistic Children: A Practical Guide for Parents. London: Jessica Kingsley Publishers, 2001.

Lewis, Lisa. Special Diets for Special Kids: Implementing a Diet to Improve the Lives of Children with Autism and Related Disorders. Arlington, TX: Future Horizons, 1998. Written by the mother of a son diagnosed with PDD-NOS who was helped greatly by dietary intervention.

Meyer, Elisa. Feeding Your Allergic Child: Happy Food for Happy Kids: 75 Proven Recipes Free of Wheat, Dairy, Corn, and Eggs. New York: St. Martin's Press, 1997.

Rapp, Doris. Is This Your Child? Discovering and Treating Unrecognized Allergies in Children and Adults. New York: William Morrow and Company, 1992.

Shattock, Paul, and Savery, Dawn. Autism as a Metabolic Disorder. 2nd edition. Booklet. Available for #3 sterling from Autism Research Unit, School of Health Sciences, University of Sunderland, Sunderland SR2 7EE, UK.

Shaw, William, and others. Biological Treatments for Autism and PDD: What's Going On? What Can You Do About It? Toronto: Sunflower Publications, 1998. An in-depth introduction to biological interventions, including diet and vitamins.

Autism Network for Dietary Intervention (ANDI)
http://members.aol.com/AutismNDI/PAGES/links.htm
Founded by Lisa Lewis and friends, this is an advocacy and information site for diet and vitamins as treatments for ASDs.

Celiac/gluten-free archive
http://www.fastlane.net/homepages/thodge/archive.htm#first

Gluten-Free Page
http://www.gluten-free.org/

No Milk Page
http://www.nomilk.com/

NO-MILK mailing list
LISTSERV@SJUVM.STJOHNS.EDU
This is an open, unmoderated discussion list for those following a milk/casein/lactose- free diet. To subscribe, send email with the subject line as "SUB NO-MILK YourFirstName YourLastName".

Applied behavior analysis

These books and online resources cover aspects of ABA and ABA-like interventions.

Fouse, Beth. A Treasure Chest of Behavioral Strategies for Individuals with Autism. Arlington, TX: Future Horizons, 1997.

Harris, Sandra L., and Mary Jane Gill-Weiss. Right from the Start: Behavioral Intervention for Young Children with Autism: A Guide for Parents and Professionals. Rockville, MD: Woodbine House, 1998.

Lovaas, Ivar, MD, and others. Teaching Developmentally Disabled Children: The ME Book. Austin, TX: Pro-Ed, 1981.

Lovaas, Ivar, MD, et al. Teaching Individuals with Developmental Delays: Basics. Austin, TX: Pro-Ed, 2002.

Luiselli, James K., and Michael J. Cameron, editors. Antecedent Control: Innovative Approaches to Behavioral Support. Baltimore, MD: Paul H. Brookes Publishing, 1998.

Maurice, Catherine, Gina Green, and Stephen C. Luce, editors. Behavioral Intervention for Young Children with Autism. Austin, TX: Pro-Ed, 1996.

The Journal of Applied Behavior Analysis (JABA)
Department of Human Development
University of Kansas
Lawrence, KS 66045-2133
(785) 843-0008
jabamlw@idir.net
http://www.envmed.rochester.edu/wwwrap/behavior/jaba/jabahome.htm
JABA is the professional journal for ABA practitioners and researchers. Its web site includes a searchable index of articles.

The Me List
rallen@iupui.edu
http://php.iupui.edu/~rallen/me_list.html
The Me List is a private, archived mailing list on ABA and related topics. It offers lots of "how to" and "how it worked" information. To subscribe, send email to moderator Ruth Allen.

Animal-assisted therapy

Dog-Play
http://www.dog-play.com/therapy.html
This site offers links related to animal-assisted therapy and therapy animals.

Island Dolphin Care
http://www.islanddolphincare.org/
One of several facilities that provide dolphin-assisted therapy.

North American Riding for the Handicapped Association
http://www.narha.org
This site provides information on hippotherapy (horse-assisted therapy) for autism and other disorders, as well as referrals to members.

Art therapy

Davalos, Sandra. Making Sense of Art: Sensory-Based Art Activities for Children with Autism, Asperger Syndrome, and Pervasive Developmental Disorders. Shawnee Mission, KS: Autism Asperger Publishing, 1999.

Flowers, Tony. Reaching Children with Autism Through Art: Practical Fun Activities to Enhance Motor Skills and to Improve Tactile and Concept Awareness. Arlington, TX: Future Horizons, 1996.

ASAFARI Gallery of Autistic Spectrum Art
http://ctrf.net/asafari/
This online art gallery is great, and includes some information on art therapy for people with ASDs.

Auditory integration and related therapies

Alvin, Juliette, and Warwick, Auriel. Music Therapy for the Autistic Child. Oxford, UK: Oxford University Press, 1991.

Berard, Guy, Monnier-Clay, Simone, and Rimland, Bernard. Hearing Equals Behavior. New Canaan, CT: Keats Publishing, 1993.

National Autistic Society. A Visit to the Light and Sound Therapy Centre. Pamphlet. London: NAS, 1996.

Stehli, Annabel. The Sound of a Miracle: A Child's Triumph over Autism. Westport, CT: Georgiana Organization, 1997. This is a mother's account of her autistic daughter's "recovery" via auditory integration.

Tomatis, Alfred, MD. The Ear and Language. Ontario: Moulin Publishing, 1996.

Cognitive Concepts Inc.
990 Grove Street
Evanston, IL 60201
(847) 328-8099 or (888) 328-8199
Fax (847) 328-5881
http://www.earobics.com/
This company offers Earobics, an AI-like package for home or school use.

Vision Audio Inc.
611 Anchor Drive
Joppa, MD 21085
(888) 213-7858
visionaud@aol.com
http://www.vision-audio.com/
Vision Audio provides Electronic Auditory Stimulation effect (EASe) recordings, engineered for a relaxing effect on people with auditory sensitivities.

Scientific Learning Corporation
300 Frank H. Ogawa Plaza, Suite 500
Oakland, CA 94612-2040
(888) 665-9707
Fax (510) 444-3580
info@scilearn.com
http://www.scientificlearning.com/
SLC sells FastForWord and other well-tested software for helping people with speech, language, and auditory processing disorders.

Society for Auditory Intervention Techniques
1040 Commercial Street SE, Suite 306
Salem, OR 97302
http://www.sait.org

The Tomatis Method
http://www.tomatis.com/
This web site provides information about the Tomatis method of AIT in English and Spanish, and also lists centers in the US, Canada, and Mexico.

Facilitated communication

Twachtman-Cullen, Diane. A Passion to Believe: Autism and the Facilitated Communication Phenomenon. Boulder, CO: Westview Press, 1998.

Floor-time play therapy and similar interventions

Hewett, David, and Nind, Melanie. Interaction in Action: Reflections on the Use of Intensive Interaction. London: David Fulton Publishers, 1998.

Greenspan, Stanley, MD. Floor Time. This videotape is about using floor-time techniques with typically developing children, but many parents and professionals will find it useful to see the method in action.

VanFleet, Risk. Filial Therapy: Strengthening Parent-Child Relationships Through Play. Sarasota, FL: Professional Resource Press, 1994.

About Floor Time
http://www.mindspring.com/~dgn/playther.htm
This web site explains basic floor-time concepts and ideas, and includes a question-and-answer section.

Family Enhancement and Play Therapy Center
P.O. Box 613
Boiling Springs, PA 17007
(717) 249-4707
Fax (717) 249-9479
http://play-therapy.com/

Child-Centered Play Therapy with Risk VanFleet, Ph.D. Video on techniques used in child-centered play therapy (CCPT) and filial therapy.

Dr. Stanley Greenspan
http://www.stanleygreenspan.com/
Several of Dr. Stanley Greenspan's books are listed under "Parenting and siblings," earlier in this appendix. Audiotapes of his lectures on using floor-time techniques and other interventions can be ordered through his web site, as can training videotapes.

Irlen lenses

The Irlen Institute
Irlen@Irlen.com
http://www.irlen.com
The Irlen Institute's web site includes pointers to practitioners who can fit the Irlen system and a company newsletter, among other resources.

Occupational therapy and sensory integration

Anderson, Elizabeth, and Pauline Emmons. Unlocking the Mysteries of Sensory Dysfunction: A Resource for Anyone Who Works with, or Lives with, a Child with Sensory Issues. Arlington, TX: Future Horizons, 1996.

Ayres, Jean, and Jeff Robbins. Sensory Integration and the Child. Los Angeles, CA: Western Psychological Services, 1983.

Bissel, Julie, and others. Sensory Motor Handbook: A Guide for Implementing and Modifying Activities in the Classroom. Torrance, CA: Sensory Integration International, 1988.

Kranowitz, Carol Stock. The Out-of-Sync Child: Recognizing and Coping with Sensory Integration Dysfunction. New York: Perigee, 1998.

Kranowitz, Carol. Answers to Questions Teachers Ask About Sensory Integration. Las Vegas, NV: Sensory Resources, 2001. A video version is also available.

Reisman, Judith E., producer. Video: Making Contact: Sensory Integration and Autism. Glendale, AZ: Center for Neurodevelopmental Studies, 1993. Available through Continuing Education Programs of America (CEPA) at (309) 263-0310.

Reisman, Judith E., producer. Video: Sensory Processing for Parents: From Roots to Wings. Glendale, AZ: Center for Neurodevelopmental Studies, 1996. Available through Continuing Education Programs of America (CEPA) at (309) 263-0310.

Sensory Comfort
(888) 436-2622
http://www.sensorycomfort.com
This catalog offers therapy equipment, clothing, and other items designed for people with SI dysfunction.

Sensory Integration International (SII)
1514 Cabrillo Avenue
Torrance, CA 90501
(310) 787-8805
Fax (310) 787-8130
info@sensoryint.com
http://www.sensoryint.com/
Referrals to SII-qualified occupational therapists, books, and other materials for sensory integration can be accessed through this organization.

SI Supplies and Equipment
http://www.mindspring.com/~mariep/si/links/supplies.html
This web site has links to many manufacturers of sensory integration and occupational therapy equipment.

Secretin

Beck, Victoria, and Gary Beck. Unlocking the Potential of Secretin. San Diego, CA: Autism Research Institute, 1998. This is a short, parent-written book about the successful use of secretin to treat an autistic child.

"Autism and Secretin"
http://curry.edschool.virginia.edu/go/cise/ose/information/secretin.html
This online research paper by John Wills Lloyd also has links to related data.

The Use of Secretin for the Treatment of Autism
http://osiris.sunderland.ac.uk/autism/sec.htm
This web site includes the full text of the "Dateline" show that featured Victoria and Gary Beck and their son, references to related journal articles, and regularly updated data.

Social skills training

Gray, Carol. Comic Strip Conversations. Arlington, TX: Future Horizons, 1994.

Gray, Carol. The New Social Story Book. 2nd illustrated edition. Arlington, TX: Future Horizons, 2001.

Gray, Carol. Taming the Recess Jungle: Socially Simplifying Recess for Students with Autism and Related Disorders. Arlington, TX: Future Horizons, 1993.

Greenspan, Dr. Stanley I., with Jacqueline Salmon. Playground Politics: Understanding the Emotional Life of Your School-Age Child. Reading, MA: Addison-Wesley, 1993.

Mannix, Darlene. Social Skills Activities for Special Children. New York: Prentice Hall, 1993. Teacher's guide with reproducible worksheets.

Myles, Brenda, and Jack Southwick. Asperger Syndrome and Difficult Moments: Practical Solutions for Tantrums, Rage, and Meltdowns. Shawnee Mission, KS: Autism Asperger Publishing, 1999.

Simpson, Richard, editor. Social Skills for Students with Autism. 2nd edition. Reston, VA: Council for Exceptional Children, 1997.

Speech therapy and communication

Carr, Edward G. How to Teach Sign Language to Developmentally Disabled Children. H & H Enterprises, 1981.

Crystal, David, editor. The Cambridge Encyclopedia of Language. Cambridge, UK: Cambridge University Press, 1987.

Freeman, Sabrina, and Lorelei Dake. Teach Me Language: A Language Manual for Children with Autism, Asperger's Syndrome, and Related Developmental Disorders. Langley, British Columbia: SKF Books, 1996. A set of worksheets and forms is also available for use with this guidebook.

Lund, Nancy J., and Judith F. Duchan. Assessing Children's Language in Naturalistic Contexts. 3rd edition. Englewood Cliffs, NJ: Prentice Hall, 1993.

Schwartz, Sue, and Joan E. Heller Miller. The New Language of Toys: Teaching Communication Skills to Special-Needs Children. Rockville, MD: Woodbine House, 1996.

American Speech-Language-Hearing Association
10801 Rockville Pike
Rockville, MD 20852
(301) 897-8682 or (800) 638-8255
http://www.asha.org/

Apraxia-Kids mailing list
Listserv@Listserv.syr.edu
http://www.apraxia-kids.org/
This mailing list covers oral motor apraxia and related disabilities. The web site is also superb. To subscribe, send an email with the message "subscribe apraxia-kids FirstName LastName".

Imaginart International
307 Arizona Street
Bisbee, AZ 85603
(520) 432-5741 or (800) 828-1376
Fax (800) 737-1376
imaginart@AOL.com
http://www.imaginart.com
Speech therapy and occupational therapy materials can be ordered from Imaginart.

IntelliTools
http://www.intellitools.com/
This firm has a great catalog of assistive technology and communication devices.

Super Duper Publications
Department SD 98
P.O. Box 24997
Greenville, SC 29616-2497
(864) 288-3536 or (800) 277-8737
Fax (800) 978-7379
custserv@superduperinc.com
http://www.superduperinc.com
SuperDuper has a huge catalog of speech and language learning materials, games, videos, books, and tests. It also includes items related to augmentative communication, social skills, and sensorimotor activities.

Medical information

Baker, Sidney M., MD, and Pangborn, Jon, PhD. Defeat Autism Now! (DAN!) Clinical Options Manual. San Diego, CA: Autism Research Institute. Written especially for physicians, this collection of data and suggestions for treating ASDs is updated regularly with information from the yearly Defeat Autism Now! conference. Parents who don't have access to a DAN! doctor may wish to buy this as a guide for their regular physician, or as a guide for setting up their own treatment plan.

Cohen, Donald J., and Fred R. Volkmar, editors. Handbook of Autism and Pervasive Developmental Disorders. 2nd edition. New York: Wiley, 1997. This is the most current collection of research data and papers related to autistic spectrum disorders. It compares and contrasts studies from around the world. It's in medical language, but not impossible to read. Expensive--check your nearest medical library.

Gillberg, Christopher, and Mary Coleman. The Biology of the Autistic Syndromes. Cambridge, UK: Cambridge University Press, 1992. Heavy-duty reading. It covers brain-imaging studies, genetics, and more. A great deal has been uncovered since 1992, but this book is still useful for those who want the hard medical facts.

Medscape
http://www.medscape.com
Medscape provides a searchable, online index to hundreds of medical journals. Many articles are available in full, others as abstracts only.

PubMed
http://www.ncbi.nlm.nih.gov/PubMed/
Free interface for searching the MEDLINE medical database, which can help you find out about studies, medications, and more.

Books about medications

There are a number of books available that list side effects, cautions, and more regarding medications. The biggest and best is the Physicians Desk Reference (PDR), but its price is well out of the average parent's or patient's league. You may, however, find a used but recent copy at a good price. Also, in Autistic Spectrum Disorders by Mitzi Waltz, Chapter 5, "Medical Interventions," and Appendix E, Medication Reference, cover most of the commonly used medications for ASD symptoms.

Those persons with allergies to food dyes, or to corn, wheat, and other materials used as fillers in pills, need to consult the manufacturer directly.

British Medical Association and the Royal Pharmaceutical Society of Great Britain. The British National Formulary (BNF). This standard reference for prescribing and dispensing drugs in the UK is updated twice yearly.

Gorman, Jack M., MD. The Essential Guide to Psychiatric Drugs. New York: St. Martin's Press, 1998.

Silverman, Harold M., editor. The Pill Book. 10th edition. New York: Bantam Books, 2002.

Sullivan, Donald. The American Pharmaceutical Association's Guide to Prescription Drugs. New York: Signet, 1998.

Web sites about medications

Canadian Drug Product Database
http://www.hc-sc.gc.ca/hpb-dgps/therapeut/htmleng/dpd.html

Dr. Bob's Psychopharmacology Tips
http://www.dr-bob.org/tips/
Excellent information on psychiatric drugs, including things like the MAOI dietary restrictions and common SSRI interactions, from Dr. Robert Hsiung.

Federal Drug Administration (FDA)
http://www.fda.gov/cder/drug/default.htm
Official US information on new drugs and generic versions of old drugs, FDA warnings and recalls, and so forth is archived here.

The Internet Drug List
http://www.rxlist.com/

PharmWeb
http://www.pharmweb.net/

Mail Order Pharmacies

CanadaRx
14 James Street North, Suite 3000
Hamilton, Ontario L8R 2J9
Canada
(905) 528-3922
http://www.canadarx.net/
This is a consortium of Canadian pharmacies set up specifically to provide discounted prescriptions to US customers, although Canadians and others can use the service as well. You must have a valid, signed prescription.

CVS ProCare Pharmacy (previously Stadtlanders Pharmacy)
600 Penn Center Boulevard
Pittsburgh, PA 15235-5810
(800) 238-7828
enroll@stadtlander.com
http://stadtlander.com/
CVS is the new name of Stadtlanders Pharmacy, which has long enjoyed a stellar reputation in the disability community.

DrugPlace.com
2201 W. Sample Road, Building 9, Suite 1-A
Pompano Beach, FL 33073
(954) 969-1230 or (800) 881-6325
Fax (800) 881-6990
cust-svc@prefrx.com
http://www.drugplace.com/

Farmacia Rex S.R.L.
Cordoba 2401
Esq. Azcuinaga 1120
Buenos Aires, Argentina
(54-1) 961-0338
Fax (54-1) 962-0153
http://www.todoservicio.com.ar/farmacia.rex/rexmenu.htm
This South American pharmacy has deeply discounted prices.

GlobalRx
4024 Carrington Lane
Efland, NC 27243
(919) 304-4278 or (800) 526-6447
Fax (919) 304-4405
info@globalrx.com
http://globalrx.com/

Masters Marketing Company, Ltd.
Masters House
5 Snadridge Close
Harrow, Middlesex HA1 1TW
UK
(011) 44 181 424 9400
Fax (011) 44 208 427 1998
info@mastersmarketing.com
http://www.mastersmarketing.com/
MMC carries a limited selection of European and American pharmaceuticals for customers worldwide.

No Frills Pharmacy
1510 Harlan Drive
Bellevue, NE 68005
(800) 485-7423
Fax (800) 522-5360
nofrills@usaverx.com
http://www.nofrillspharmacy.com/

Peoples Pharmacy
http://www.peoplesrx.com/
This chain, based in Austin, Texas, provides mail order service and can also compound medications.

Pharmacy Direct
3 Coal Street
Silverwater, NSW 2128
Australia
(02) 9648-8888 or (1300) 656-245
Fax (02) 9648 8999 or (1300) 656 329
pharmacy@pharmacydirect.com.au
http://www.pharmacydirect.com.au
You must have a prescription from an Australian doctor to use this mail order service, although they will ship to New Zealand as well.

The Pharmacy Shop
5007 N. Central
Phoenix, AZ 85012
(602) 274-9956 or (800) 775-6888
Fax (602) 241-0104
sales@pharmacyshop.com
http://www.pharmacyshop.com/

Victoria Apotheke (Victoria Pharmacy)
Dr. C. Egloff
P.O. Box CH-8021
Zurich, Switzerland
(01) 211-2432 (Europe) or (011) 411-211-24 32 (US)
Fax (01) 221-2322 (Europe) or (011) 411-221-2322 (US)
victoriaapotheke@access.ch
http://www.access.ch/victoria_pharmacy

Help with medications

You may be able to get medications free just by providing documentation to charitable programs run by pharmaceutical companies. In the US, the Pharmaceutical Manufacturers Association publishes a directory of programs for indigent patients, with contact details listed by company. Doctors can get a copy of the PMA's official guide by calling (800) 762-4636, and patients can browse the online version at http://www.phrma.org/searchcures/dpdpap/

Most indigent patient programs require that you have no insurance coverage for outpatient prescription drugs, that purchasing the medication at retail price would be a hardship for you because of your income and/or expenses, and that you do not qualify for a government or third-party program that can pay for the prescription.

The Medicine Program
P.O. Box 515
Doniphan, MO 63935-0515
(573) 778-1118,
help@themedicineprogram.com
http://www.themedicineprogram.com/
The Medicine Program can help you sign up with indigent patient programs.

Help with medical care expenses

The Doug Flutie, Jr. Foundation for Autism
c/o The Giving Back Fund
230 Congress Street
Boston, MA 02110
(617) 556-2820
Fax (617) 426-5441
http://www.dougflutie.org/
Founded by pro football player Doug Flutie, who is the father of an autistic son, this foundation raises funds to help disadvantaged families pay for treatment and to support research efforts. It does not give direct grants to families, but a nonprofit treatment organization can apply for help to pay for your child's program.

If you need medical assistance in a location far from home but can't afford the cost of a flight or hotel, the following resources may be able to help. If you are outside North America, contact your national airline for assistance and advice.

AirCare Alliance
6202 South Lewis Avenue, Suite F2
Tulsa, OK 74136-1064
(918) 745-0384 or (800) 260-9707
http://www.aircareall.org/

AirLifeLine
5775 Wayzata Boulevard, Suite 700
Minneapolis, MN 55416
(877) 247-5543
http://www.airlifeline.org

Hope Air/Vols d'Espoir
Procter & Gamble Building
4711 Yonge Street
Toronto, Ontario M2N 6K8
(416) 222-6335
mail@hopeair.org
http://www.hopeair.org/

Miracle Flights for Kids
2756 N. Green Valley Parkway, No. 115
Green Valley, NV 89014-2120
(702) 261-0494
http://www.miracleflights.com/

National Association of Hospital Hospitality Houses
P.O. Box 18087
Ashville, NC 28814-0087
(800) 524-9730
http://www.nahhh.org/

PatientTravel.org
c/o Mercy Medical Airlift
4620 Haygood Road, Suite 1
Virginia Beach, VA 23455
(800) 296-1217
http://www.patienttravel.org/

Genetic counseling resources

Genetic counselors have special training in helping families understand the implications of having a member diagnosed with a genetic disorder. They can explain whether these disorders will be passed on to a diagnosed person's children, and help you assess associated risks. They can also provide information about genetic testing for other family members.

American Board of Genetic Counseling Inc.
9650 Rockville Pike
Bethesda, MD 20814-3998
(301) 571-1825
Fax (301) 571-1895
http://www.faseb.org/genetics/abgc/abgcmenu.htm
The ABGC credentials professionals in the field of genetic counseling, and can help you find a reputable member via phone, mail, or its web site.

GeneTests-GeneClinics
Children's Hospital and Regional Medical Center
P.O. Box 5371
Seattle, WA 98105-0371
(206) 527-5742
Fax (206) 527-5743
genetests@genetests.org
http://www.genetests.org
GeneTests and GeneClinics are federally funded genetic testing resources. The web site provides a list of genetic research and clinical laboratories, descriptions of genetic testing and counseling, and information for patients and professionals.

European Society of Human Genetics
Clinical Genetics Unit
Birmingham Women's Hospital
Birmingham B15 2TG United Kingdom
(44) 0-121-623-6820
esgh@esgh.org
http://www.eshg.org/

Human Genetics Society of Australasia
Royal Australian College of Physicians
145 Macquarie Street
Sydney, NSW 2000 Australia
(02) 9256-5471
Fax (02) 9251-8174
hgsa@racp.edu.au
http://www.hgsa.com.au/

Transition planning and adult issues

Gray, Carol. What's Next? Preparing the Student with Autism or Other Developmental Disabilities for Success in the Community. Arlington, TX: Future Horizons, 1992.

Debbault, Dennis. Autism, Advocates, and Law Enforcement Professionals: Recognizing and Reducing Risk Situations for People with Autistic Spectrum Disorders. London: Jessica Kingsley Publishers, 2001. Debbault explores problems that can happen when people with ASDs encounter the police.

Hingsburger, Dave. Just Say Know! Understanding and Reducing the Risk of Sexual Victimization of People with Developmental Disabilities. Eastman, Quebec: Diverse City Press, 1995. Howlin, Patricia. Autism: Preparing for Adulthood. London: Routledge, 1997. Transition planning, with special attention to resources and possibilities in the UK.

Meyer, Roger. Asperger Syndrome Employment Workbook. London: Jessica Kingsley Publishers, 2000. Written by a person with AS, this excellent workbook can help adults understand their vocational interests and secure employment.

Morgan, Hugh. Adults with Autism: A Guide to Theory and Practice. Cambridge, UK: Cambridge University Press, 1996.

Mortlock, John. The Socio-Sexual Development of People with Autism and Related Learning Disabilities (pamphlet). London: National Autistic Society, 1993.

Slater-Walker, Gisela, and Christopher Slater-Walker. An Asperger Marriage. London: Jessica Kingsley Publishers, 2002. This personal story from a man with AS and his nondisabled partner illustrates issues that come up in family relationships.

Smith, Marcia Datlow, Ronald G. Belcher, and Patricia D. Juhrs. A Guide to Successful Employment for Individuals with Autism. Baltimore: Paul H. Brookes Publishing, 1995.

Sobsey, Dick, et al., editors. Disability, Sexuality, and Abuse: An Annotated Bibliography. Baltimore: Paul H. Brookes Publishing, 1991.

National Information Center for Children and Youth with Disabilities. Transition Planning: A Team Effort. NICHY, P.O. Box 1492, Washington, DC 20013, (202) 884-8200 or (800) 695-0285, or on the Web at http://www.nichcy.org/pubs/transum/ts10txt.htm


Patient Centers Home |  O'Reilly Home  |  Write for Us
How to Order  |  Contact Customer Service

© 1999, O'Reilly & Associates, Inc.