News & Resources
"Ten Things To Do If
You Suspect You Have Ovarian Cancer" is an excerpt
from the upcoming book,
Ovarian Cancer: Your Guide to Taking Control
by Kristine Conner and Lauren Langford (coming May 2003).
Musa Mayer summarizes
presentations at the
San Antonio Breast Cancer Symposium. The Symposium
is the largest annual medical conference dedicated solely to
research on breast cancer.
2003's list of Follow-Up Clinics
for Childhood Cancer Survivors has been published.
Newsmaker interview: Lorraine Johnston on lung cancer. In
this fascinating interview, learn how solely blaming "smokers"
obscures other causes such as industrial pollution; reduces
funding for lung cancer; and negatively affects research on
all cancers. Johnston reviews the latest "bright spots" in
lung cancer research.
Newsmaker interview: Mitzi Waltz on autism.
Waltz talks about autism issues most in the news:
rising incidence, suspected links with vacinations, what's
known about genetics and autism, treatment
research, politics and funding, and autism's impact on families.
"Bipolar Disorders at Work,"
excerpted from Adult Bipolar
Disorders, addresses the two on-the-job
issues for people with bipolar disorders: getting work and
"Tourette's Syndrome: Effective Parenting for Severe Tics or
High Impulsivity." Most kids with Tourette's syndrome
pose no special challenges when it comes to childrearing.
However, parents find extra skills invaluable when a child
has severe tics, a high level of impulsivity, or additional
Lung Cancer by Lorraine Johnston received two excellent
reviews. Text of the full reviews from
Oncology Nursing Forum
Nancy Keene interview on childhood cancer.
Author-advocate Nancy Keene answers questions on treatment advances,
research directions, parent activism, issues for survivors,
Library Journal announced the
top consumer health
books in its May Consumer Health Supplement.
Childhood Brain & Spinal Cord Tumors was one of the
books recognized as "best of the year."
Library Journal gave a
starred review to the new book
Childhood Brain & Spinal Cord Tumors,
recommending it for all public and health-related libraries.
50 free copies of a Cancer Bibliography--containing descriptions
of 110 best books from all publishers--may be requested by any
nonprofit cancer organization or any library.
with your name and shipping address.
Long-Term Follow-Up Clinics for childhood cancer
survivors are listed by author-advocate Nancy Keene, for 2002.
The printable PDF version of our Spring Catalog features reviews and articles.
Oncologist-therapist team Bill & Susie Buchholz, authors of
Live Longer, Live Larger,
give tools to patients for thriving with cancer:
The New York Times reviews Making Informed Medical Decisions
in an article entitled
"Through the Information Maze"
by John Langone.
Three Patient-Centered Guides--Childhood Cancer Surrivors, Organ
Transplants, and Making Informed Medical Decisions--have been
named to Library Journal's list of
Top 24 Consumer Health Books of 2000.
Did you know: 50% of those diagnosed with lung cancer are
never-smokers or former smokers? In
The Stigma of Lung Cancer, patient and activist
Karen Parles examines the perils of dismissing lung cancer
as a "smoker's disease."
Oncology patients (and their nurses) can print out these
Patient Fact Sheets on topics such as tests for
lung cancer, prostate cancer resources, multiple myeloma resources,
evaluating a clinical trial, childhood retinoblastoma, and many others.
Read our exclusive interview with Lucy
Thomas, coauthor of Making Informed Medical
Decisions: Where to Look and How to Use What You Find. Lucy explains
how to evaluate medical information, the importance of good research, and how
non-medical help is important, too.
Musa Mayer, author of Advanced Breast Cancer: A
Guide to Living with Metastatic Disease, is profiled on the
drkoop.com web site. Mayer recently won an advocacy
award from the National Breast Cancer Coalition.
Visit our Family Resource Centers for health information on:
cancer clinical trials,
colon and rectal cancer,
life on wheels,
childhood cancer, and
childhood cancer survivors.
This information is free to print out as long as you retain copyright
notice on the printouts.
Childhood Cancer Survivors: A Practical Guide to Your Future, Second Edition.
A completely updated new edition for survivors of childhood cancer,
released November 2006. Covers follow-up care, late effects, navigating
the system, and managing relationships, insurance, and jobs. Stories
from dozens of survivors are woven throughout.
A comprehensive new resource for ovarian cancer patients,
released May 2003. Thoroughly explains standard treatments,
as well as treatment controversies and clinical trials. Stories
from dozens of survivors are woven throughout.
Straight From the Gut:
Living with Crohn's Disease and Ulcerative Colitis.
This new book (May 2003) includes the latest
medications, promising research, comprehensive resources,
and the voices of dozens of people living with these potentially
After Breast Cancer.
A new book from Musa Mayer puts fear of recurrence in
perspective, for those who have finished treatment. Covers
follow-up testing, the latest survival statistics for today's
treatments, and coping with anxiety. Shares stories of over 40
A new second edition from Nancy Keene and Honna Janes-Hodder,
is completely revised and reviewed by top medical
experts in the field of solid-tumor cancers. Changes
in treatments and in available resources for families are
reflected. Childhood Cancer also includes stories
from over 100 parents, children, and siblings.
Autistic Spectrum Disorders, is in a new second edition,
completely revised and medically reviewed. US author and advocate Mitzi Waltz,
now studying at the Autism Research Unit in the UK, includes the latest
research on treatments and potential causes for developmental disorders
on the autistic spectrum.
The new Spanish edition,
Ayudando a su Hijo en el Hospital, of
Your Child in the Hospital has just been published.
This culturally competent translation was done by
Mario and Oralia Tercero and the
PlaneTree Health Resource Library of San Jose,
A new third edition from Nancy Keene,
is completely revised and medically reviewed, reflecting changes
in treatments and in resources for families. Long regarded as the
"bible" for parents facing this devastating diagnosis, Childhood
Leukemia offers medical facts clearly explained and stories from
over 100 parents, children, and siblings.
The new book from Mitzi Waltz,
Adult Bipolar Disorders,
helps people secure a diagnosis, manage family life, understand
medical interventions, explore therapeutic interventions, and get
care within their existing healthcare plan. A separate title,
Bipolar Disorders: A Guide to Helping Children & Adolescents,
is written for parents of children with this condition.
A childhood brain or spinal cord tumor is a devastating diagnosis.
Two well-known pediatric nurse practitioners and one parent of a
child with a brain tumor have written a new book for parents.
Reviewed by the world's top medical experts,
Childhood Brain & Spinal Cord Tumors
offers a wealth of resources for parents, for getting the best of
treatments and for coping.
An oncologist-therapist team provides cancer patients and families
with scientifically grounded and psychologically sensitive
approaches to cancer care. Their new book,
Live Longer, Live Larger: A Holistic Approach for Cancer
Patients and Their Families, summarizes what they have
learned from thousands of patients: how to thrive with cancer.
Author Mitzi Waltz, an advocate for people with neurological
challenges, has come out with a new book.
Tourette's Syndrome: Finding Answers & Getting Help,
has been reviewed by physicians, psychologists, and other experts.
Included are the stories of dozens of families living with this
Straightforward language and the words of patients and their
families are the hallmarks of this book on the number one cancer
killer in the US. Written by a widely respected author and patient
Lung Cancer: Making Sense of Diagnosis, Treatment & Options,
has been reviewed by top medical experts and physicians.
Includes an in-depth focus on standard and emerging treatments,
medical tests, clinical trials, and research.
Author Barbara "Grannybarb" Lackritz is a leading patient
activist in the leukemia community and herself a long-term
leukemia survivor. She hosts several online mailing lists,
maintains a well-known leukemia web site
(GrannyBarb & Art's Leukemia Links),
and speaks frequently to doctors and government
organizations. Her new book,
emphasizes descriptions and treatments for specific subtypes and looks at
trends in research, such as monoclonal antibodies.
More than 2 million in the US have some form of epilepsy.
Although grand mal seizures are most well-known and dramatic,
more people have partial seizures. Partial seizures are a
devastating disability; undiagnosed, they can lead to permanent
Partial Seizure Disorders
is a guide for families,
that offers support and information about treatments.
With doctors spending on average seven minutes per patient, increasingly
patients and their families are having to dive into the mounds of often
arcane, disorganized medical information to confirm their diagnosis and
research their treatment options.
Making Informed Medical
Decisions, a consumer guide to researching medical information,
provides advice on undertaking effective search strategies.