Media praise for Childhood Cancer Survivors: A Practical Guide to Your Future
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"Keene, the mother of a leukemia survivor, and nurse practitioners specializing in pediatric oncology explain the long-term challenges that patients will face. They discuss issues such as growth problems, fertility, discrimination in the workplace and in obtaining insurance, and the emotional aspects of surviving cancer. This is a very useful book for both survivors and their families."
-- , #5 Best Consumer Health Book of 2000
"This extraordinary book speaks to all ages as it describes the world of childhood cancer and provides information vitally needed by survivors, families, and medical teams. In an easy-to-read and well-organized format, the book is packed with facts about the emotional upheavals and drastic changes in both mental and physical health of young patients during treatment and long after the cancer has been cured."
-- , Surviving: A Cancer Patient Magazine
"This book is a survivor's dream! It draws heavily on survivor talk. My response was quick and extremely positive, as it made me feel this was our' book, not something written for doctors or nurses, but for us. It talks our talk, deals with our issues, and faces reality head-on with the gutsy manner of survivors themselves. There's plenty of accurate and understandable technical' info, but there's plenty of heart as well, which is precisely what we haven't had in resources for us to date. No sugar-coating here. For that, I take my hat off to the authors. Thank you for having the courage to call us by our names and call all our difficulties out by name. I really feel that after publication of this book, I will no longer struggle with what to give patients I work with regarding late effects, or what to give new-survivor friends who are interested and need to know this. The book addresses the issues in the gentle yet straightforward method that is needed. That's what I call a success."
"Navigating our current healthcare system in the hope of optimizing one's health requires an educated and empowered survivor. This book will fill a critical educational gap by providing childhood cancer survivors practical and up-to-date information regarding their cancer and treatment. Perhaps of equal value are the many poignant vignettes that describe the trials and victories of the cancer experience. I consider this book a must read' for the survivors followed in our long-term follow-up program."
"Childhood Cancer Survivors and its companion website are clearly an ongoing labor of love by three experts and advocates in the area of childhood cancer survivorship. These publications unmistakably communicate the expectation that childhood cancer survivors can and should take charge of their health to live long and well after they overcome their disease. This is a relatively new message; however, it is one that is becoming increasingly important to individuals and society as survival rates improve and the population of childhood cancer survivors expands. I highly recommend this book for childhood cancer survivors and their families, as well as for oncology, general pediatric, and adult practitioners who care for them."
"There is a paucity of guides for both health care providers and patients that address the special issues of childhood cancer survivors. This important book was written to fill this void and empower survivors. The topics in the beginning of the book range from relationships with families and friends to discrimination at jobs to health insurance issues. Subsequent sections deal with specific childhood cancers and long-term health effects from cancer treatments and recommended follow-up tests. Each organ system is addressed with a discussion of the possible late effects, their detection, and management. Throughout the book, stories of childhood cancer survivors personalize the text. Childhood Cancer Survivors contains a wealth of important information that will benefit survivors for years after their treatment of cancer. It also contains a listing of service organizations, books, and online resources. It is clearly a must have' reference for both healthcare professionals and childhood cancer survivors. OncoLink gives this book its highest recommendation."
-- , University of Pennsylvania Cancer Center
"This is a wonderful resource for childhood cancer survivors—a complete, concise guide to potential health problems that can occur following treatment for cancer in childhood. With information comes power, and with the information in this book, childhood cancer survivors will be empowered to take an active role in their life-long medical follow-up. In some cases, this information could be life-saving!"
"This is a vitally important book for anyone who has had cancer or been touched by cancer in a child, spouse, parent, sibling, loved one, or friend. That's just about everyone. Many of these people may feel that, once treatment has ended, especially after the magic 5 years have passed without incident, it is nonproductive to think about the cancer anymore. Dwelling on one's past is, of course, going too far, especially if it prevents one from moving on to the many adventures awaiting him or her. And a parent's efforts, however well intended, to keep a child forever cognizant of the past cancer can make that child unnecessarily fearful. But if knowledge is power, then ignorance is just plain dumb and can even be harmful. This book treads a fine middle ground by advocating education, providing information on all the potential late effects, some of which have a strong probability of appearing and many of which have very little probability of occurring, and, most important, encouraging those affected to advocate for themselves and to educate others, especially their doctors."
"This book is an extraordinary resource for survivors of childhood cancer, as well as for their families, caregivers, and friends. It provides clear answers to the important medical, psychosocial, and financial questions that young survivors raise during and after cancer treatment."
"This book is a must for any parent or adult survivor of childhood cancer who is seeking to understand real and potential late effects of cancer therapy—both physical and psychosocial. It is also a valuable resource for healthcare professionals involved in pediatric oncology. The chapters about specific childhood cancers and body systems affected by therapy are comprehensive and detailed. The chapters dedicated to survivorship, relationships, and emotions capture the positives and negatives of the double-edged sword of survivorship. The many personal quotes interspersed throughout the book provide a personal link to which most, and possibly all, families affected by childhood cancer can relate. After reading this book, there can be no question about the necessity of specialized long-term follow-up for survivors. The practical chapters on insurance and follow-up describe how to best obtain this care."
"There is compelling evidence in the scientific literature to support continued follow-up for childhood cancer survivors. If all survivors were followed in a comprehensive late effects clinic, this book might not be necessary. However, we are a mobile society with variable medical care and insurance practices. Ensuring that survivors themselves understand the late effects associated with their individual therapy is probably the most important means to obtain compliance with follow-up. Providing survivors with information necessary to monitor for late effects of therapy allows them to advocate for their own healthcare. This book will prove to be an important resource for survivors as they navigate various healthcare systems."
"I think this book is terrific. It is clear, direct, and contains valuable information and advice. It will surely be an excellent resource for survivors and their families. I will certainly recommend it to patients I see."
"Congratulations on being a survivor of childhood cancer. Cancer and its therapy can be associated with short- and long-term effects on your health. We want you to focus now on a happy and healthy life. It is important to protect your health by learning as much as you can about the type of cancer you had, the treatment you received, and the best medical follow-up. This book will give you the information to bring back to your healthcare providers to help them provide the best possible healthcare for you. You will learn invaluable information about possible delayed effects of cancer and its treatment, health and wellness promotion, recommendations for follow-up, and prevention strategies. Curing your cancer was important to us—now we want you to join us by reading this book and becoming an active partner with us in your ongoing healthcare needs."
"Every childhood cancer survivor and family member of a survivor, should have a copy of Childhood Cancer Survivors––it is that good! This is the book that you read all the way through when you first get it, then keep nearby as a ready reference. Each medical late effect is discussed clearly, with details on risk factors, signs and symptoms, and medical management. Frank discussions of education, insurance, and disability issues empower survivors and guide them through the complex maze of policies and agencies that can help them. But that's not all: I love the personal stories that are included throughout the book; it is so friendly and readable. And the third edition has been updated with current information on late effects, including references to journal articles. Childhood Cancer Survivors is one of a kind, the only book written specifically for the survivors and their families. I highly recommend it."
"An essential book for childhood cancer survivors, their parents, and the health care providers who treat them."
-- , Library Journal,
"This book is a practical guide to help survivors and their families do just that thank you to Nancy, Wendy, and Kathy for providing this valuable resource!"
-- , Alexs Lemonade Stand Foundation,
"Childhood Cancer Survivors is among eight books sent to LLS chapters this summer for patient services managers and other chapter staff to use for their own reference or to recommend or loan to patients and caregivers."
-- , eNewsLine, Leukemia and Lymphoma Society
"Patients and their family members will find this to be an essential resource for dealing with the complexities of health care and cancer survivorship. Overall, this is a well-written and easy to read resource for patients and is highly recommended for all public and consumer health libraries."
-- , Consumer Connection Newsletter, Medical Library Association
"A valuable addition to any consumer health library collection. Written by Nancy Keene, Wendy Hobbie and Kathy Ruccione, child cancer experts, this new edition is well-defined by its title. Intertwined with practical information and explained in laypersons terms are inspirational stories from over 100 childhood cancer survivors and their parents."
-- , Medical Library Association Newsletter, Nursing and Allied Health Resources Section
"This book, used by LLS chapters across the country, contains clear, concise, and easy-to-understand information, and has a comprehensive index and a lengthy list of helpful resources. Woven throughout the text are true stories--practical, poignant, moving, funny--from more than 100 survivors and parents. The book also contains a cancer survivor's treatment record."
-- , Hermatologic Cancer News, Leukemia and Lymphoma Society
"First published in 2000 and chosen a Best Consumer Health Book by Library Journal and then revised in 2007, includes updated information about..."
-- , Oncology Times, September 2012 (Vol. 34, no. 7, pg. 7)