Childhood Leukemia, Second Edition

A Guide for Families, Friends & Caregivers

By Nancy Keene
October 1999
Pages: 509
ISBN 10: 1-56592-632-3 | ISBN 13: 9781565926325
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Description

The second edition of this comprehensive guide offers detailed and precise medical information for parents that includes day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, and social, emotional, and financial issues. It features a wealth of tools for parents and contains significant updates on treatments and procedures.
Full Description

This most complete parent guide available covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline.

Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their leukemic child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone.

Parents who read this book will encounter medical facts simply explained, advice to ease their daily life, and tools to be a strong advocate for their child. This second edition contains significant updates to the information on treatments, chemotherapy drugs, bone marrow transplants, coping with side effects, and resources. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.




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Childhood Leukemia, 2nd Edition Review,  February 10 1999
Submitted by Marlene Sorota   [Respond | View]



I bought Nancy's Book (the first edition) when my daughter was diagnosed with Pre B ALL on 5/7/97. I showed the book to my daughter's Oncologist, and his office now give out the books to every newly diagnosed case. This book puts to rest some fears as a parent you may have. I HIGHLY recommend it to any mom or dad who's child has been diagnosed with Leukemia.

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Media reviews "Highly recommended. In this new edition, Keene provides updates on treatment including bone marrow transplants, chemotherapy drugs, and methods of dealing with side effects. A pull-out record keeper allows patients to record treatment information for future caregivers. ...Poignant and supportive." --Alan Rees, Alan Rees on Consumer Health, A Majors Report

"This wonderful book is an informative addition to the House library, and one we will recommend wholeheartedly. By providing this resource to the children and families staying here, you enable them to find a bit of hope and peace of mind in a time of great difficulty and confusion. This is a wonderful assistance to us in our continuing efforts to provide an important service to families in need." --Peggy Enright, House Director, Boston Ronald McDonald House

"Childhood Leukemia is the very best book on the subject that I have read, and I've read everything I could put my hands on. It is absolutely correct in the subject matter it covers and the approach. I wish someone had put a copy in my hands the day after the diagnosis. It literally will be a life-saving book." --Rebecca Laird, Parent

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