Non-Hodgkin's Lymphomas Making Sense of Diagnosis, Treatment & Options

April 1999
Pages: 572
ISBN 10: 1-56592-444-4 | ISBN 13: 9781565924444
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Book description

The sixth most common cancer, non-Hodgkin's lymphomas (NHL) affect 300,000 Americans. In the fast-moving treatment environment, all but super-specialist MDs find it hard to keep abreast of changes that affect the treatments and lives of NHL patients. Non-Hodgkin's Lymphomas helps those living with this disease to participate in wise treatment decisions, as well as to cope with tests, treatment side effects, and other practical issues.
Full Description

Prior to publication of this resource guide, no book on the market targeted the non-Hodgkin's lymphoma survivor's need for understandable information. While there are medical texts on the non-Hodgkin's lymphomas as well as inspirational first-person accounts from survivors of related cancers such as leukemia, between these two sources of information existed a considerable information gap.

In straightforward language and in a format that anticipates the reader's questions, this book addresses diagnosis and its emotional tumult, finding a good oncologist, the theories and practical aspects of treatment, characteristics of non-Hodgkin's lymphomas, side effects and long-term effects of treatment, medical tests and procedures, and prognoses.

Other topics of interest examined are coping with hospitalization, stress and its effects on the immune system, sexuality and fertility after treatment, how to interact successfully with medical personnel, and getting support from family, friends, employers and the broader community. The end of successful treatment and its sometimes surprising effects on one's emotions are covered in a separate chapter, as is the experience of relapse and how to select second-line treatment to regain remission. Clinical trials of promising new therapies grounded in Western medicine are covered in depth. The theories and experiences of marrow transplantation and stem cell support are surveyed. Two frank chapters on recordkeeping, finances, insurance, employment issues, traveling for care, and finding free treatment are included. Throughout the text and in several appendices, the reader is referred to other books, Web sites, and organizations that can provide more detail on a given topic.

This book is intended for both newly diagnosed and long-term survivors of the non-Hodgkin's lymphomas, their caregivers and loved ones, and for medical personnel who interact with survivors of the non-Hodgkin's lymphomas.

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Book details

First Edition: April 1999
ISBN: 1-56592-444-4
Pages: 572
Average Customer Reviews: (Based on 0 Reviews)


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Non-Hodgkin's Lymphomas Review,  July 12 1999
Submitted by Janet Nightingale   [Respond | View]



How I wish that I had had access to this book when I first heard I had NHL. It would have resolved so many of my anxieties.
I congratulate Lorraine Johnson on creating an accessible but scientfically up to date book on a complex disease with such a variety of diagnoses.
If you have NHL or know someone who has, do not hesitate to buy this book. It will be a source of expert advice and knowledge - and of inspiration too.

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Media reviews

"When I gave this book to one of our patients, there was an instant, electric connection. A sense of enlightenment came over her while she absorbed the information. It was thrilling to see her so sparked with new energy and focus." --Susan Weisberg, Clinical Social Work, Department of Radiation Oncology, SUMC, Stanford, CA

"Johnston presents clear, up-to-date, and accurate medical information reviewed by specialists in the field...a valuable contribution to consumer health collections." --Library Journal, May 1999

"In my humble, but correct, opinion, this is the best medical book for the layman that was ever assembled." --Steve Arnold, NHL patient

"Non-Hodgkin's Lymphomas is very informative, and written in a format that is easy for patients to follow." --Sharon Bolster Mills, RN, MSN, CPON Leukemia Research Foundation

Information is power and an effective tool to combat the negative energy of fear. So it is with satisfaction that I offer Lorraine Johnston's book about non-Hodgkin's lymphomas (NHL) as a clear, meticulous, detailed, and thorough collection of information to combat that negative energy.

"Johnston's scientific explanations are self-effacing but knowledgeable, calm, and reassuring, achieving her purpose of allaying fears. Science is made human by stories in patients' own words of their experiences with the disease, tests, treatments, and doctors, allowing us to feel their emotions as they progress through various stages of treatment." --Merle O'Rourke Thompson, from a review in the Journal of the National Cancer Institute, March 1, 2000

"This is a comprehensive guide that describes in-depth current treatment options, clinical trials and promising future treatments, treatment of side effects, and communicating with medical personnel. The book is designed to help those living with non-Hodgkin's lymphoma to participate in their own healthcare." --Oncology Nursing Forum

"If you are looking for a clear, comprehensive book specifically dealing with non-Hodgkin's lymphomas, look no further! This 556-page book is easy-to-read and contains information for the newly diagnosed patient. Actual patient experiences are rolled into the clinical text for a true translation of emotions." --Cure for Lymphoma Foundation newsletter

"About a month ago you kindly sent me a proof copy of 'Non-Hodgkin's Lymphomas' by Lorraine Johnston, after speaking to Susan Weisberg at Stanford University, and asked me for my comments. I would like to say from the outset, having read it from cover to cover, that I found it a most fascinating book and one which I would recommend all Non-Hodgkin's Lymphoma patients to read. When I was first diagnosed with NHL in San Francisco I exhausted the doctors and nurses by firing numerous questions at them. I can honestly say that this book contains all my questions and many many more together with the answers in layman's language but without oversimplifying anything and without overalarming one by quoting specific statistics relating to prognosis.

"I know that I will keep referring back to chapters in the book during my journey through the treatment. It is a far better reference for me than any other papers or books that I have been given to read. Thank you once again for your generosity in allowing me my own copy to keep and I'm sure that other people diagnosed with NHL with whom I am bound to come into contact will find it equally informative and helpful particularly as a book of this calibre will not get to South Africa in the near future." --Robyn Kipps, Cape Town, South Africa

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