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Change is hard. Adherence is harder.

By Julie Steele
March 5, 2014

If you’ve ever tried to count calories, go on a diet, start a new exercise program, change your sleep patterns, spend less time sitting, or make any other type of positive health change, then you know how difficult it is …

Four short links: 25 January 2014

By Nat Torkington
February 25, 2014

Bitcoin Markets Down — value of bitcoins plunges as market uncertain after largest bitcoin exchange goes insolvent after losing over 750k bitcoins because they didn’t update their software after a flaw was discovered in the signing of transactions. Flappy Bird …

The Challenge of Health Data Security

By Julie Steele
February 5, 2014

Dr. Andrew Litt, Chief Medical Officer at Dell, made a thoughtful blog post last week about the trade-offs inherent in designing for both the security and accessibility of medical data, especially in an era of BYOD (bring your own device) …

Four short links: 21 January 2014

By Nat Torkington
January 21, 2014

On Being a Senior Engineer (Etsy) — Mature engineers know that no matter how complete, elegant, or superior their designs are, it won’t matter if no one wants to work alongside them because they are assholes. Control Theory (Coursera) — …

Four short links: 28 October 2013

By Nat Torkington
October 28, 2013

A Cyber Attack Against Israel Shut Down a Road — The hackers targeted the Tunnels’ camera system which put the roadway into an immediate lockdown mode, shutting it down for twenty minutes. The next day the attackers managed to break …

Biotech’s Cambrian Era

By Ryan Bethencourt
October 15, 2013

As I write this article, I’m reflecting on the long expanses of otherworldly playa I’ve just left, watching sandstorms pass in front of me while in altered mental states and contemplating the future of our beloved biotech industry. I have, …

What Developers Can Learn from healthcare.gov

By James Turner
October 4, 2013

The first highly visible component of the Affordable Health Care Act launched this week, in the form of the healthcare.gov site. Theoretically, it allows citizens, who live in any of the states that have chosen not to implement their own …

Denny Ausiello discusses phenotypes, pathways, and stratification

By Julie Steele
September 13, 2013

Last month, Strata Rx Program Chair Colin Hill, of GNS Healthcare, sat down with Dr. Dennis Ausiello, Jackson Professor of Clinical Medicine at the Harvard Medical School, Co-Director at CATCH, Pfizer Board of Directors Member, and Former Chief of Medicine …

Doctors vs Data

By Fred Trotter
September 4, 2013

There is a storm brewing in Healthcare. Doctors have been in charge of healthcare for a long time, and have become comfortable, sometimes even arrogant, with their authority and power. But dumb data beats smart doctors every time. Forward thinking …

The Role of Big Data in Personalizing the Healthcare Experience: Mobile

By Bonnie Feldman
September 1, 2013

This article was written with Ellen M. Martin and Tobi Skotnes. Dr. Feldman will deliver a webinar on this topic on September 18 and will speak about it at the Strata Rx conference. Cheaper, faster, better technology is enabling nearly …

Cancer and Clinical Trials: The Role of Big Data In Personalizing the Health Experience

By Bonnie Feldman
August 30, 2013

This article was written with Ellen M. Martin and Tobi Skotnes. Dr. Feldman will deliver a webinar on this topic on September 18 and will speak about it at the Strata Rx conference. Despite considerable progress in prevention and treatment, …

Genomics and the Role of Big Data in Personalizing the Healthcare Experience

By Bonnie Feldman
August 23, 2013

This article was written with Ellen M. Martin and Tobi Skotnes. Dr. Feldman will deliver a webinar on this topic on September 18 and will speak at the Strata Rx conference. Genomics is making headlines in both academia and the celebrity …

A Day at the 2013 Genomes, Environments and Traits Conference

By James Turner
April 26, 2013

The GET (Genomes, Environments and Traits) conference is a confluence of parties interested in the advances being made in human genomes, the measurement of how the environment impacts individuals, and how the two come together to produce traits.  Sponsored by …

A bit about Strata Rx: our goals, our content, and you

By Julie Steele
March 29, 2013

After a strong inaugural event in October 2012, Strata Rx is heading into its second year. My fellow chair, Colin Hill, and I have spent a lot of time thinking about and discussing what we’d like to see on the …

Making government health data personal again

By Julie Steele
March 19, 2013

Health care data liquidity (the ability of data to move freely and securely through the system) is an increasingly crucial topic in the era of big data. Most conversations about data liquidity focus on patient data, but other kinds of …

Four short links: 11 February 2013

By Nat Torkington
February 11, 2013

How Virtual Fences Will Transform Rural America (The Atlantic) — When it comes to managing animals, every conventional fence that I have ever built has been in the wrong place the next year. Stately — a font of states which …

Not just big data, but better data

By Julie Steele
January 25, 2013

I was honored to chair O’Reilly’s inaugural edition of Strata Rx, our conference on data science in health care, this past October along with Colin Hill. As we’re beginning to plan this year’s event, I find myself thinking a lot …

14 big trends to watch in 2013

By Alex Howard
December 22, 2012

2012 was a remarkable year for technology, government and society. In our 2012 year in review, we looked back at 10 trends that mattered. Below, we look ahead to the big ideas and technologies that will change the world, again. …

Four short links: 19 October 2012

By Nat Torkington
October 19, 2012

Home-made 3D-Printed Drones — if only they used computer-vision to sequence DNA, they’d be the perfect storm of O’Reilly memes :-) Hacking Pacemakers For Death — IOActive researcher Barnaby Jack has reverse-engineered a pacemaker transmitter to make it possible to …

Open health data in practice: Increase your access to lab results

By Tim O'Reilly
October 16, 2012

I’m convinced that there’s a wave of innovation coming in healthcare, driven by new kinds of data, new ways of extracting meaning from that data, and new business models that data can enable.  That’s one of the reasons why we launched …

Investigating the industrial Internet

By Jon Bruner
October 11, 2012

Consumer networks have revolutionized the way companies understand and reach their customers, making possible intricate measurement and accurate prediction at every step of every transaction. The same revolution is underway in our infrastructure, where new generations of sensor-laden power plants, …

Balancing health privacy with innovation will rely on improving informed consent

By Alex Howard
August 23, 2012

Society is now faced with how to balance the privacy of the individual patient with the immense social good that could come through great health data sharing. Making health data more open and fluid holds both the potential to be …

Four short links: 1 August 2012

By Nat Torkington
August 1, 2012

China Hackers Hit EU Point Man and DC (Bloomberg) — wow. The extent to which EU and US government and business computer systems have been penetrated is astonishing. Stolen information is flowing out of the networks of law firms, investment …

Have a healthy conference

By Andy Oram
July 9, 2012

In honor of the third health care track at the O'Reilly Open Source Convention, I invite everyone to join me in five ways to have a healthy conference.

Four short links: 9 July 2012

By Nat Torkington
July 9, 2012

Personalized Leukemia Treatment (NY Times) -- sequenced the tumor's DNA, found the misbehaving gene, realized there was an existing experimental treatment to tackle that gene, and it worked. Reminds me of My Daughter's DNA, which had its origin in the poignant story of Hugh Reinhoff sequencing his daughter's DNA to diagnose her condition. It's all about medical professionals now,...

Four short links: 25 June 2012

By Nat Torkington
June 25, 2012

Stop Treating People Like Idiots (Tom Steinberg) -- governments miss the easy opportunities to link the tradeoffs they make to the point where the impacts are felt. My argument is this: key compromises or decisions should be linked to from the points where people obtain a service, or at the points where they learn about one. If my bins...

Top Stories: June 18-22, 2012

Top Stories: June 18-22, 2012
By Mac Slocum
June 22, 2012

This week on O'Reilly: Artist Nina Paley explained her "intellectual disobedience" stance on copyright, Shahid Shah looked at the future of health IT integration, and illustrator Laura Maaske discussed the next generation of digital imagery.

Clinician, researcher, and patients working together: progress aired at Indivo conference

By Andy Oram
June 21, 2012

SMART and Indivo offer a far-reaching platform for giving patients access to data and working seemlessly with other cooperating institutions.

Clinician, researcher, and patients working together: progress aired at Indivo conference

By Andy Oram
June 21, 2012

SMART and Indivo offer a far-reaching platform for giving patients access to data and working seemlessly with other cooperating institutions.

The state of Health Information Exchange in Massachusetts

By Nate Osit
June 21, 2012

Although health information exchange should be identified as a process, having the structures and organizations to facilitate exchange is a challenge facing health care. A recent conference articulated these issues, and presented clear plans on how Massachusetts is addressing them.

How the federal government helps health care standards evolve

By Andy Oram
June 20, 2012

In this interview, Federal Health Architecture director Dr. Lauren Thompson discusses the state of health information exchange.

Games for Health covers current status of behavior change

By Andy Oram
June 15, 2012

A few existing and upcoming projects that illustrate what games are doing in health care, and some trends to watch.

Games for Health covers current status of behavior change

By Andy Oram
June 15, 2012

A few existing and upcoming projects that illustrate what games are doing in health care, and some trends to watch.

Health care privacy discussed as an aspect of patient control

By Andy Oram
June 13, 2012

Privacy is caught up with issues of security, clinical decision-making, mobile health, and medical errors. So the topics at this conference are relevant to all the issues health care advocates talk about regularly: data exchange and ACOs, clinical research, the use of apps on mobile devices, the Quantified Self movement, and social networking in patient empowerment.

Data in use from public health to personal fitness

By Andy Oram
June 12, 2012

Releasing public data can't fix the health care system by itself, but it provides tools as well as a model for data sharing.

Data in use from public health to personal fitness

By Andy Oram
June 12, 2012

Releasing public data can't fix the health care system by itself, but it provides tools as well as a model for data sharing.

Health reform leaders focus on patient access to records as key barrier

By Andy Oram
June 11, 2012

A convocation of trend-setters and organizational leaders in U.S. health care advised two government organizations driving health reform--the Office of the National Coordinator at the Dept. of Health and Human Services, and the Dept. of Veteran Affairs--how to push forward one of their top goals, patient engagement.

Four short links: 11 June 2012

By Nat Torkington
June 11, 2012

When Code Can Kill or Cure (The Economist) -- I've linked to the dangers of closed source devices before, but this caught my eye: "In the 1990s we developed an excellent radiation-therapy treatment-planning system and tried to give it away to other clinics," says Dr Mackie. "But when we were told by the FDA that we should get our...

Top Stories: May 21-25, 2012

Top Stories: May 21-25, 2012
By Mac Slocum
May 25, 2012

This week on O'Reilly: We learned how data, privacy and shared services are driving the White House's new digital government plan; Jim Stogdill examined the fine line between obsessive personal tracking and an open-ended approach to motivation; and author John Ferrara discussed gaming's role in cultural transformation.

Health Information Technology: putting the patient back into health care

By Andy Oram
May 21, 2012

In health information technology, we have a rare chance to ensure that the most affected members of the public actually have their own direct representative. A letter in support of Regina Holliday.

What do mHealth, eHealth and behavioral science mean for the future of healthcare?

By Alex Howard
May 21, 2012

We're just at the beginning of discovering how to best develop and utilize mobile technology to improve the health of individuals and the public, says Dr. Audie Atienza.

What do mHealth, eHealth and behavioral science mean for the future of healthcare?

By Alex Howard
May 21, 2012

We're just at the beginning of discovering how to best develop and utilize mobile technology to improve the health of individuals and the public, says Dr. Audie Atienza.

How to start a successful business in health care at Health 2.0 conference

By Andy Oram
May 16, 2012

Great piles of cash are descending on entrepreneurs who develop health care apps, but that doesn't make it any easier to create a useful one that your audience will adopt. About the Spring Fling conference, enterpreneurship, and open data.

The state of health IT according to the American Hospital Association

By Andy Oram
May 6, 2012

The letter conveys a rather sorrowful message about the state of health IT in the United States. One request--to put brakes on the requirement for hospitals to let patients see their own information electronically--has received particularly strong coverage and vigorous responses.

Recombinant Research: Breaking open rewards and incentives

By Andy Oram
May 2, 2012

To move from a hothouse environment of experimentation to the mainstream of one of the world's most lucrative and tradition-bound industries, Sage Bionetworks must aim for its nucleus: rewards and incentives. Comparisons to open source software and a summary of tasks for Sage Congress.

Recombinant Research: Breaking open rewards and incentives

By Andy Oram
May 2, 2012

To move from a hothouse environment of experimentation to the mainstream of one of the world's most lucrative and tradition-bound industries, Sage Bionetworks must aim for its nucleus: rewards and incentives. Comparisons to open source software and a summary of tasks for Sage Congress.

Recombinant Research: Sage Congress plans for patient engagement

By Andy Oram
May 1, 2012

The Vioxx problem is just one instance of the wider malaise afflicting the drug industry. Managers from major pharma companies expressed confidence that they could expand public or "pre-competitive" research in the direction Sage Congress proposed. The sector left to engage is the one that's central to all this work--the public.

Recombinant Research: Sage Congress plans for patient engagement

By Andy Oram
May 1, 2012

The Vioxx problem is just one instance of the wider malaise afflicting the drug industry. Managers from major pharma companies expressed confidence that they could expand public or "pre-competitive" research in the direction Sage Congress proposed. The sector left to engage is the one that's central to all this work--the public.

Recombinant Research: Sage Congress promotes data sharing in genetics

By Andy Oram
April 30, 2012

Through two days of demos, keynotes, panels, and breakout sessions, Sage Congress brought its vision to a high-level cohort of 230 attendees from universities, pharmaceutical companies, government health agencies, and others who can make change in the field.

Recombinant Research: Sage Congress promotes data sharing in genetics

By Andy Oram
April 30, 2012

Through two days of demos, keynotes, panels, and breakout sessions, Sage Congress brought its vision to a high-level cohort of 230 attendees from universities, pharmaceutical companies, government health agencies, and others who can make change in the field.


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