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Technology that gets under your skin

By Jenn Webb
March 27, 2014

Editor’s note: we’re running a series of five excerpts from our forthcoming book Designing for Emerging Technologies, a compilation of works by industry experts in areas of user experience design related to genomics, robotics, the Internet of Things, and the …

Genomics and the Role of Big Data in Personalizing the Healthcare Experience

By Bonnie Feldman
August 23, 2013

This article was written with Ellen M. Martin and Tobi Skotnes. Dr. Feldman will deliver a webinar on this topic on September 18 and will speak at the Strata Rx conference. Genomics is making headlines in both academia and the celebrity …

Podcast: George Church on genomics

By Jon Bruner
July 12, 2013

A few weeks ago some of my colleagues and I recorded a conversation with George Church, a Harvard University geneticist and one of the founders of modern genomics. In the resulting podcast, you’ll hear Church offer his thoughts on the …

A very serious game that can cure the orphan diseases

By Andy Oram
May 2, 2013

In the inspiring tradition of Foldit, the game for determining protein shapes, Fit2Cure crowdsources the problem of finding drugs that can cure the many under-researched diseases of developing countries. Fit2Cure appeals to the player’s visual–even physical–sense of the world, and …

Data sharing drives diagnoses and cures, if we can get there (part 2)

By Andy Oram
April 29, 2013

Editor’s note: Earlier this week, Part 1 of this article described Sage Bionetworks, a recent Congress they held, and their way of promoting data sharing through a challenge. Data sharing is not an unfamiliar practice in genetics. Plenty of cell …

Data sharing drives diagnoses and cures, if we can get there (part 1)

By Andy Oram
April 29, 2013

The glowing reports we read of biotech advances almost cause one’s brain to ache. They leave us thinking that medical researchers must command the latest in all technological tools. But the engines of genetic and pharmaceutical innovation are stuttering for …

Discovering genetic associations using large data

By Andy Oram
October 9, 2012

David Heckerman from Microsoft Research presents a summary of his work in the session “Discovering Genetic Associations on Large Data.” This was part of the Strata Rx Online Conference: Personalized Medicine, a preview of O’Reilly’s conference Strata Rx, highlighting the …

Health records support genetics research at Children's Hospital of Philadelphia

By Andy Oram
June 26, 2012

Michael Italia from Children's Hospital of Philadelphia discusses the tools and methods his team uses to manage health care data.

Health records support genetics research at Children's Hospital of Philadelphia

By Andy Oram
June 26, 2012

Michael Italia from Children's Hospital of Philadelphia discusses the tools and methods his team uses to manage health care data.

Recombinant Research: Breaking open rewards and incentives

By Andy Oram
May 2, 2012

To move from a hothouse environment of experimentation to the mainstream of one of the world's most lucrative and tradition-bound industries, Sage Bionetworks must aim for its nucleus: rewards and incentives. Comparisons to open source software and a summary of tasks for Sage Congress.

Recombinant Research: Breaking open rewards and incentives

By Andy Oram
May 2, 2012

To move from a hothouse environment of experimentation to the mainstream of one of the world's most lucrative and tradition-bound industries, Sage Bionetworks must aim for its nucleus: rewards and incentives. Comparisons to open source software and a summary of tasks for Sage Congress.

Recombinant Research: Sage Congress plans for patient engagement

By Andy Oram
May 1, 2012

The Vioxx problem is just one instance of the wider malaise afflicting the drug industry. Managers from major pharma companies expressed confidence that they could expand public or "pre-competitive" research in the direction Sage Congress proposed. The sector left to engage is the one that's central to all this work--the public.

Recombinant Research: Sage Congress plans for patient engagement

By Andy Oram
May 1, 2012

The Vioxx problem is just one instance of the wider malaise afflicting the drug industry. Managers from major pharma companies expressed confidence that they could expand public or "pre-competitive" research in the direction Sage Congress proposed. The sector left to engage is the one that's central to all this work--the public.

Recombinant Research: Sage Congress promotes data sharing in genetics

By Andy Oram
April 30, 2012

Through two days of demos, keynotes, panels, and breakout sessions, Sage Congress brought its vision to a high-level cohort of 230 attendees from universities, pharmaceutical companies, government health agencies, and others who can make change in the field.

Recombinant Research: Sage Congress promotes data sharing in genetics

By Andy Oram
April 30, 2012

Through two days of demos, keynotes, panels, and breakout sessions, Sage Congress brought its vision to a high-level cohort of 230 attendees from universities, pharmaceutical companies, government health agencies, and others who can make change in the field.

Sage Congress: The synthesis of open source with genetics

By Andy Oram
April 19, 2012

A conversation with Sage Bionetworks founder Stephen Friend about how open source can support a business model in drug development, the progress of current data sharing projects, and more.

Collaborative genetics, part 5: Next steps for genetic commons

By Andy Oram
May 6, 2011

The final installment of this series, about a Sage Commons Congress on the open-source sharing of genetic research, looks at what Sage Bionetworks and its friends need to do.

Collaborative genetics, part 4: Private practice, how to respect the patient

By Andy Oram
May 5, 2011

The fourth installment of this series, about a Sage Commons Congress on the open-source sharing of genetic research, focuses in on the rights of patients and how they want researchers to treat their data.

Collaborative genetics, part 3: Dividing the pie, from research to patents

By Andy Oram
May 4, 2011

The third installment of this series, about a Sage Commons Congress on the open-source sharing of genetic research, explores the barriers that keep private companies and researchers from sharing their work.

Collaborative genetics, part 2: Five Easy Pieces, Sage's Federation

By Andy Oram
May 3, 2011

The second installment of this series, about a Sage Commons Congress on the open-source sharing of genetic research, looks at the reasons collaborative research is critical to finding new treatments.

Collaborative genetics, Part 1: The ambitious goals of Sage Commons Congress

By Andy Oram
May 2, 2011

The opening installment of this series, about a Sage Commons Congress on the open-source sharing of genetic research, explains the elements of modern research and how collaboration facilitates progress.

Personal Genome Project Expanding the Personal Gene Pool from 10 to 100,000

By Timothy M. O'Brien
April 26, 2009

The Personal Gemone Project is evolving from a small pilot of ten to a massive collection of 100,000 public medical histories and DNA sequences. Find out how you can register to participate in an experiment that will lay the necessary foundation for a complete understanding of how one's genetic sequence affects health and disease.


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